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Old 02-26-2014, 09:28 AM #11
St George 2013 St George 2013 is offline
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Default Hey there missy :)

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Originally Posted by uglogirl View Post
Hi Deb,
I sent away for Neuropathy creams and unguentine from ages ago for burns
The only thing I find that helps are ice cubes and rubbing cream on after. Capsacian, bengay not of it has helped. I use cetaphil lotion too it's all soothing when putting on and massaging my feet but that is it.

I'll take ice cubes and my water jets they both seem to help a lot.

How are you ? I had a bad week and weekend but yesterday was almost 'normal' and I enjoyed it so much. I also feel pretty good this morning but I know that monster is going to rear it's ugly head and put me on my butt. Of course I'd love for it not to this time !

I can't massage my feet or put them in moving water....sets the nerves off like crazy. My daughter in law takes care of my feet......she was in a hair, nail, feet salon until this past May when she graduated from nursing school. So very proud of her. But the first time I went to the shop and could not handle the jets in the foot tub it really upset me. I've never really been the type to spend money on myself but I really enjoyed getting my feet done every 4 weeks !

It's so great that you can work.....gosh I miss it so much....I was in claims and loved all the research that had to be done to figure out what was going on with each claim....never a dull day ! Since I had been doing it for 26 years I was a resource for other people in the company and I miss dealing with all those peeps.

They say God always has a plan and I'm guessing now that it is for me to be able to stay home with my 82 year old mother.....problem is she takes care of me more than I do her !

Let me know what's going on with you


Debi from Georgia
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Old 03-01-2014, 08:07 PM #12
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Originally Posted by St George 2013 View Post
Oh no....my snow is melting

My PCP had me listed as pre-diabetic for a few years....I'm type 2 now....the chemo caused my A1C to spike to 8.7 which is really not that high but I guess with the chemo drugs it just did a job on me. And my dr said the same as yours....this can still happen with well controlled diabetes.

I have been on metformin 2 a day and this past May she added 2 mg of glimepiride/Amaryl...pretty much the same as you but they raised your metformin. The glimepiride brought my A1C down from 8.7 to 6.7 in 3 months...when my A1C was checked again in 3 months it was still 6.7. Still hoping to get that number lower.

Getting started on the gabapentin was pretty hard.....he had me increasing every week....when I would increase I would have a headache every afternoon for about 4 days, was grouchy, lightheaded and unbalanced. After the 4 days it would stop and then I'd have to up it again.....this last time he upped it I asked if I could increase every 2 weeks and he said ok....that made all the difference in the world.

We have a large yard and I usually walk the dog 4 or 5 times a day. Some days that is not possible and I've even had to call family over to walk him when my husband was not home. Thankfully that does not happen a lot but I really have trouble walking, standing or just having my feet on any surface.

I tried the Capsaicin cream for about 4 weeks but couldn't tell any difference in the pain. They told me the cream would be warm on my feet but I didn't feel a thing. When I told the dr he just laughed. My upper right arm wakes me up at night and if I put that cheap icy hot on it that helps. And I can feel the warmth.....tried it on my feet too but could not feel any warmth. Oh well I tried

My feet like something cold....my side porch is terracotta tiles and sometimes I just go out there barefoot and stand for a few minutes. I also have a 'chillow', the one advertised on TV, and use it on my feet too.

My newest symptom is stinging...weird I think. My pain and symptoms ebb and flow all day long.

Godebod to talk to you. Please keep us posted

Debi from Georgia
Hi Deb, How are you doing? Garbapentin makes me drowsy. Have some days that are bearable have a few that are not.
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Old 03-03-2014, 11:13 PM #13
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Default Hi Debi! Wonderin how you are doing

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Originally Posted by St George 2013 View Post

Good morning ..... my name is Debi and I'm from Georgia...just had about 4 inches of snow here !

My small fiber neuropathy is diabetes/chemo related. I'm going on 9 months now after sudden onset a month after chemo ended. I've had to be my own advocate and bounced around from dr to dr until I could find some help. I'm still in the middle of my journey. I did ask a foot and ankle dr to do a skin punch biopsy and he did....I have zero A and C fibers in my feet and they say 'severe small fiber neuropathy.

I have a neuro that I'm not very fond of but will keep seeing until I have my appoint March 25th at Emory in Atl. For quite a few years before all this happened......I remember at the end of the working day being in the recliner and my toes burning like fire coming off my toes. I'd sleep and be fine the next morning. During chemo my A1C went up and between that and the chemo of taxol/carbo that pretty much did me in. Almost exactly a month after chemo ended I could barely walk and also had the horrible electrical currents running thru both feet.....it would actually outline my toenails and fingernails like someone was tracing them with an electrical pen or something. I've gone thru the whole range of symptoms and still have them. My neuro got me up to 2700 mg a day of gabapentin/Neurotin but my brain could not take it....made me unsteady and my mind was basically mush. So in Dec he lowered me back down to 1800 mg a day and that cleared my head but didn't help the pain. He recently added 60 mg a night of Cymbalta and it has actually made me feel better but has done nothing for the pain but has allowed me to deal with it better........of course it's been a double edged sword....because I 'feel' good I want to do stuff around the house that I have been unable to do (clean, cook, do laundry, sweep, etc) and that puts me in the bed like it did yesterday. I have to sleep with my feet hanging off the side of the bed and no covers touching them.

My PCP of over 5 years gave me vicodin and Xanax when this started in May 2013 and increased my Paxil to 40 mg a day. My neuro would rather I did not take these. My PCP had told me to get on a pain mgmt. schedule but I refused to until Sept 2013 when the pain became so bad I realized I had to take them regularly. So now I'm on 1/2 a 7.5 vicodin every 3 hours and Xanax when that doesn't do it.....which is about 5 to 10 times a week.

This has been overwhelming to me and I've had to file for SSDI. Not approved yet...in the reconsideration stage at this point and waiting for approval or a denial.

My neuro has asked me if I think the gabapentin is working and I told him I was not really sure.....I still hurt and have no daily quality of life but who knows how much worse I would be now if not on the meds ? Probably in a fetal position in the floor thinking I was dying.

I am surrounded by a loving and supportive family so that helps a great deal. They help with the cleaning and cooking and grocery shopping.

Not sure if any of this helps and I am long winded and 'chatty'......guess I just needed to get it all out there this morning

Please keep us posted.

Debi from Georgia
Hi was reading your post again and was wondering how you are doing.

You have Diabetic Neuropathy like I do and am on Garbapentin, I am on 1800 mgs too.

I had a good week with maybe a 2-4 with symptoms of numbness, burning and hurting.

Then had an bad episode nothing I did would help the water jets, cold water, massage, lotions for neuropathy was just miserable and depressed.

I had some cool whip the night this happened more than enough probably 3/4 of a cup and almost right after the monster started with the pins and needs and numbness.

I was wondering how many carbs a day to you have and if you noticed flare ups after having too many carbs.

I may have a day or two with very little symptoms which I can tolerate.

What works for you when you have flareups.

You said you brain was mush with the Garbapentin I noticed my thoughts are in a slower motion and I do forget but remember after back tracking.
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Old 03-04-2014, 08:06 AM #14
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Default Good morning :)

Hello there ! So nice of you to be thinking of me

I don't count carbs.....heck I don't count anything...lol.....I'm ok on 1800 mg of gaba but when he upped it to 2700 mg that's when I went a little crazy. My neuro added 60 mg of Cymbalta at night and just increased to 90 mg. I've actually had more symptoms since starting the 90 mg. May just be a coincident.

I don't think I would describe mine as flare-ups......everyday when I wake up and put my feet on the floor I have absolutely no idea what kind of day it's going to be. When my head is clear the pain is easier to tolerate but when my head is kind of out of it the day is terrible......last week I had 2 good days in a row, did too much because I actually felt good and then was down for days.

My last A1C was 6.7 and I'm not much of a sweet eater but I love orange juice and try not to buy it !

I'm still trying to figure out how to live with this daily. I have a lot of symptoms that happen on and off all day long. My feet are usually doing something even if it's just that shimmering feeling. The electrical shocks in my hands and feet stop me in my tracks.

Are the electrical shocks still waking you up at night ?

I think me being a very silly 51 year old helps me with all this. I don't take a lot of stuff seriously and that drives my poor husband crazy ! I'm sure you can see that from my posts

Take care and let me know how you're doing.

Your Georgia Friend (and it's COLD this morning ! )
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Old 03-04-2014, 05:34 PM #15
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Quote:
Originally Posted by St George 2013 View Post
How are you ? I had a bad week and weekend but yesterday was almost 'normal' and I enjoyed it so much. I also feel pretty good this morning but I know that monster is going to rear it's ugly head and put me on my butt. Of course I'd love for it not to this time !

I can't massage my feet or put them in moving water....sets the nerves off like crazy. My daughter in law takes care of my feet......she was in a hair, nail, feet salon until this past May when she graduated from nursing school. So very proud of her. But the first time I went to the shop and could not handle the jets in the foot tub it really upset me. I've never really been the type to spend money on myself but I really enjoyed getting my feet done every 4 weeks !

It's so great that you can work.....gosh I miss it so much....I was in claims and loved all the research that had to be done to figure out what was going on with each claim....never a dull day ! Since I had been doing it for 26 years I was a resource for other people in the company and I miss dealing with all those peeps.

They say God always has a plan and I'm guessing now that it is for me to be able to stay home with my 82 year old mother.....problem is she takes care of me more than I do her !

Let me know what's going on with you


Debi from Georgia
Yes I work at home though taking orders and customer service been doing it for 5 yrs now. How long have you been off work? You're so young. Maybe you can work at home. I find keeping busy keeps my mind all of it.

You are so fortunate to have your mom with you my mom passed away when she was 67 I really miss her a lot.

I couldn't imagine not putting my feet in water must be tough getting washed up and massage is the only way my feet feel good. As long as I am massaging them they feel fine just stop for a second and I could just scream from all the burning.

I know about the feeling good and the green eyed monster spoils the party.
Those days seem far and few behind anymore. Although knock on wood during the day it is tolerable. Of course some burning and numbness mostly the toes and balls of my feet. It's after dinner it starts and does not stop until I walk the floors, massage put on ointment, use the ice. It all helps while I am applying it just stop and it's intolerable again then it's Xanax time.


I have taken Xanax off and on for years for panic attacks. Up until 2 months ago I would have a prescription last for months.

From what you write you don't seem to get much relief from the symptoms and that can't be fun.

At least I have not had the shooting electrical currents lately that's a plus. I wonder how much the Gaba is helping.
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Old 03-04-2014, 05:44 PM #16
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Quote:
Originally Posted by St George 2013 View Post
How are you ? I had a bad week and weekend but yesterday was almost 'normal' and I enjoyed it so much. I also feel pretty good this morning but I know that monster is going to rear it's ugly head and put me on my butt. Of course I'd love for it not to this time !

I can't massage my feet or put them in moving water....sets the nerves off like crazy. My daughter in law takes care of my feet......she was in a hair, nail, feet salon until this past May when she graduated from nursing school. So very proud of her. But the first time I went to the shop and could not handle the jets in the foot tub it really upset me. I've never really been the type to spend money on myself but I really enjoyed getting my feet done every 4 weeks !

It's so great that you can work.....gosh I miss it so much....I was in claims and loved all the research that had to be done to figure out what was going on with each claim....never a dull day ! Since I had been doing it for 26 years I was a resource for other people in the company and I miss dealing with all those peeps.

They say God always has a plan and I'm guessing now that it is for me to be able to stay home with my 82 year old mother.....problem is she takes care of me more than I do her !

Let me know what's going on with you


Debi from Georgia
Yes I work at home though taking orders and customer service been doing it for 5 yrs now. How long have you been off work? You're so young. Maybe you can work at home. I find keeping busy keeps my mind all of it.

You are so fortunate to have your mom with you my mom passed away when she was 67 I really miss her a lot.

I couldn't imagine not putting my feet in water must be tough getting washed up and massage is the only way my feet feel good. As long as I am massaging them they feel fine just stop for a second and I could just scream from all the burning.

I know about the feeling good and the green eyed monster spoils the party.
Those days seem far and few behind anymore. Although knock on wood during the day it is tolerable. Of course some burning and numbness mostly the toes and balls of my feet. It's after dinner it starts and does not stop until I walk the floors, massage put on ointment, use the ice. It all helps while I am applying it just stop and it's intolerable again then it's Xanax time.


I have taken Xanax off and on for years for panic attacks. Up until 2 months ago I would have a prescription last for months.

From what you write you don't seem to get much relief from the symptoms and that can't be fun.

At least I have not had the shooting electrical currents lately that's a plus. I wonder how much the Gaba is helping.
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Old 04-04-2014, 10:18 AM #17
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Hi Everyone,
I am new to the form live in Ohio the BRRR state and have been newly diagnosed with Diabetic Peripheral Neuropathy.

For a while now and then my feet would feel numb and have shooting pains and pin pricks also feet and hands would itch.

About a month ago I felt the floor feeling icy on my foot and during the day would have more numbness and electrical shots, burning feet, and would be woken up with my feet feeling like they were being electrocuted with jolts that went to my teeth so I set up an appt. with my Doctor.

He prescribed Gabapentin and I started last week on 300 mg 3xs a day. Still had a lot of discomfort and still could not sleep without the scary electrical feeling in my feet accompanied with numbness. Needless to say, I call and let his nurse know.

I got a call back and was told to double the Gabapentin to 2 capsules of 300mg three times per day that was on Monday.

I have noticed improvement at least I slept through the night, I feel kind of shaky never felt that way before unless there was a good reason. My feet burn today like a bad sun burn.

Please chat me if you can shed some insight on all of this for me. I would really appreciate your input. Will this ever feel better I find it very depressing?
Hello neighbor! I'm from Indiana! I have had some symptoms of neuropathy too. I'm a "new" diabetic, having been diagnosed in January. Hopefully we can help each other!
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Old 04-04-2014, 08:52 PM #18
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Default Hey uglogirl and Michelle :)

To uglogirl.....I sent you a private message this morning......are you able to move around this site better now ?

And Welcome Michelle ! Glad you found us. This is a wonderful site with such great and caring people.

Debi from Georgia
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