[RidesBlues]

My wife has recently been diagnosed with Stiff Limb Syndrome and has now been diagnosed with Hepatacellular Carcinoma.
While I have tried to dig up every thing I can find on SPS, it has been frustrating as her many doctors are in agreement that "we dont know" is the most frequent response to questions and causation.
Her numerologist, endocrinologist and liver surgeon are all the head of their department at a large well known hospital facility. At least they are honest.
She is getting IVIG treatments every 30 days and was only 2 treatments into an early treatment plan when the small tumor was found.
Her neurologist says that the cancer is the WRONG one for SPS.
He says he has known of one other patient with this cancer and a diagnosis of Stiff Limb Syndrome. When the liver tumor was resectioned and removed, the symptoms of Stiff Limb Syndrome went away. He said they never figured out what the patient had.
He said it was "interesting".
Has anyone here heard of this?

thank you on behalf of my wife of 33 years.
RidesBLues

[Darlene]

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Click onto the following forum for soe assistance.
http://neurotalk.psychcentral.com/forum44.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[RidesBlues]

It is daunting when someone you deeply love becomes so ill and you really cant get good information from your medical sources. Also, I am getting weary of going to the barn to cry.
RidesBlues

[RidesBlues]

Does anyone else here have this disorder?
Thank YOu
RidesBlues