[Moonspell67]

Hi all, I was diagnosed with SCA-2 (ataxia) in 2002, though I knew I had ataxia; my Mom has it, and my Grandfather and his Mom and numerous siblings had it, so once I noticed symptoms, I was convinced I had ataxia too. I used to be exceptional at sports (hockey, football, badminton, skating, volleyball, etc.) but as I aged, I noticed my skills were worsening. From being the best player in the league, to best on team to unable to play sports is a hard pill to swallow. I have found that sticking to a healthy food/supplement/exercise routine has been very beneficial in slowing the disease. I am unable to use heavy weights, especially 'free' weights which require balance; on the treadmill, I must use both hands to stabilize myself. Also, junk foods, booze, tobacco, neurotoxins (such as aspartame, MSG, fluoride) as well as most chemicals are just terrible for me. I knew something was 'off' when I was 15; at 22, I knew it was ataxia; at 28 I tested positive for sca-2; now I am 40. But my last employment before going on Disability was when I was 32. I find that exercise counters depression. With a healthy diet and proper supplements, I have managed to slow ataxia, and the side-effects of such is good health! Except for having ataxia, apparently I am very healthy; I haven't even had a sniffle or a cold or stuffed nose in 8 years. But everyday simple things are getting harder; like stairs, getting dressed, typing, walking, picking-up small objects, etc. I can no longer jog/run (except on treadmill while hanging on tight), bicycle, I can still drive but shoulder checks are an issue so I rarely drive, walking on ice is difficult and causes many falls, getting in a boat is difficult...and lifting/carrying weights is tough. So I use light weights (10-20lb dumbells) and excessive repetitions for exercise.
Hello to Neurotalk and all the members, I look forward to discussing things with others dealing with similar challenges.

[Darlene]

Moonspell67,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene