[dubonnet]

Hi, I am posting, as my husband (70) has finally been diagnosed at CSF Leak. He had an epidural Nov 30/12 for a radical prostatectomy . He came out of the surgery with terrible headaches, that no one could diagnose. He came home, & after a few weeks they went away. April 12/13 we returned home from a trip, having driven 2000 miles in the car. Upon coming in the house & sitting down, he experienced a thunderbolt head ache, & tingling all down his right side to his feet. 911 was called & they came & found nothing wrong. They stayed an hour & repeated all the tests, & he seemed fine & they left. 3 days later I took him to the ER with the same symptoms. He was subsequently seen at least 6 more times with no diagnosis.

He has had numerous MRI's & CT's and nothing has shown up. He just had his 3rd blood patch, & the Anesthesiologist noted, that fluid came out when he was doing the patch.

His symptoms have not gone away, & actually he is worse now. He can spend 3 - r hrs up & he has to spend all his life laying down. He cannot do anything other than shower.

On top of this he is receiving Radiation for his Prostrate and since the last blood patch, he is so dizzy, I have to take him to the treatments in a wheel chair. (he has only 6 treatments left). He has gone from a very active person, baseball, golf, to a couch potato. Our social life stopped in April, we do not go out for dinner or to friends, as have to come home.

Our Neurologist who dragged his feet, is now pursuing the option of the Mayo clinic, but since we are CDN we have to go through our provincial medical inse to see if they will pay something towards it. The Neurologist is wanting to send us to AZ & we are closer to MN, as are in Manitoba.

I am sorry this is so long, but I wanted to try to give all the information to see if anyone has any suggestions. Our family Dr has given up, & when I took in the CSF information before he was diagnosed, he said that people always bring in symptoms that they think they have. Believe me this is not my husband, he is one who never could sit still for a long time, he was very active. I am exhausted as do everything, & thank God we have a son who comes over almost every day to help or call us.

[Darlene]

dubonnet,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Here is a forum where you will find some fellow members to assist you as the can.

CSF Leak:
http://neurotalk.psychcentral.com/forum78.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[St George 2013]

Just wanted to say I am so sorry for what you and your husband are going through.

I have small fiber neuropathy and don't know what I would do without my son and daughter

Debi from Georgia