[dragonflymum]

Hello Friends,

My name is Maura (hello Maura...lol) sorry - couldn't resist, just watched Nemo with my daughter. Anyways, my saga began 4 years ago when I began losing feeling in my right hand.

Suffice it to say, we did the doctor thing, tests, specialists etc...and to date, I've had 5 surgeries: carpal tunnel release, cubital tunnel release, ulnar nerve transposition, medial epicondelectomy, and most recently rt. rib resection/scalenectomy and brachial plexus release (with bands and all that good stuff).

I'd love to tell you it was a smashing success and I'm here to encourage others. Well, yeah, there's the encouraging part - but not the success part. I have NTOS and still have little to no feeling in my hand. In fact, we are now exploring auto immune as it's in both hands, joints and feet. Migraines are a lovely added benefit

I would love to learn coping strategies from others...let go of the guilt, quit worrying that you had to give up your life's passion after 26 years of teaching, and ummm...oh, yeah, let's not forget the ever popular - feeling of a burden to my husband and kids.

Thanks for letting me share my little story. I'd like to chat more, but my hand is giving up and letting me know it's miserable! Looking forward to getting to know y'all!

Maura

[Lara]

Hello Maura,
Welcome to the NeuroTalk Support Groups!

I'm sorry to read that you've had little success after your surgeries.

Here is the link to our Thoracic Outlet Syndrome Forum

There is a LOT of excellent information in the "Stickies" near the top of the forum there and you'll find a lot of people who are having, or have had, similar experiences.

There is also a Headache Forum

and

Autoimmune Diseases Forum

take care.

[ginnie]

Welcome to Neuro Talk. I sure understand about loosing feeling in hands etc. I have PN. and that same nerve in the elbow gives me pins and needles. Have not done the surgery yet, as I am trying to do PT instead. I know that anyone with these kinds of issues, at times feel a burden to their family. Let love rule, and trust your family that they will stick by you no matter what your body does. We will be here at Neuro talk for you too. Has your doctor recommended anything to date that helps with your symptoms? Have you tried any therapies outside the box? PT, and acupuncture come to mind? Mrs. D is very educated about therapies for nerve damage. If you don't get enough ideas, contact her. She may know of some suppliments that may help in time. Ginnie

[dragonflymum]

Thank you for the warm welcome! I have been lurking for about 3 months and finally posted...really seeking out the info on the auto immune connection as bloodwork is borderline a few things, nothing clear cut. I think that's the frustrating part (well one of them!).

Thanks again - looking forward to getting to know you guys!

Maura

[Darlene]

Maura,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on her condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[pabb]

Originally Posted by dragonflymum

Thank you for the warm welcome! I have been lurking for about 3 months and finally posted...really seeking out the info on the auto immune connection as bloodwork is borderline a few things, nothing clear cut. I think that's the frustrating part (well one of them!).

Thanks again - looking forward to getting to know you guys!

Maura

check out celiac disease.