[imdan]

Hi, my name is Dan, an outdoorsman construction worker type, who just returned home from icu being just diagnosed with MG and after 9 Plasmapheresis treatments to grasp the ability to breathe and swallow again. lol that seemed long winded.

Anyways, so far I am good spirited and feeling a little better although the diplopia causes some writing issues, there are benefits at times.
Anyways, the symptoms started abruptly about a year ago with double vision and have intensified to weakness fatigue, slurred speech, breathing issues, inability to swallow, choking, vomiting etc….
Now I am trying to learn what exactly I have, since my doc was not very coherent and transferred me to another I can’t afford.
All I know is it’s “the rare type MG non musk”….. says there is not much paperwork on it, a bunch of trial and error stuff. Who knows? Been a week since my last plasma pher treatment and it’s a mixed bag.
Anyways, any and all help in understanding about it is appreciated.
I should note, I am a very strong Christian and either way it works out I am in good hands.
Second note, I had to add Plasmapheresis to my spell check. Must be rare.

[Kitt]

Welcome imdan.

[Darlene]

Dan,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place. I see you have found the PT forum which is the forum where you will assistances with your questions.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene