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Old 05-14-2014, 04:43 PM #1
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imdan imdan is offline
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Join Date: May 2014
Posts: 19
10 yr Member
imdan imdan is offline
Junior Member
imdan's Avatar
 
Join Date: May 2014
Posts: 19
10 yr Member
Default Newly diagnosed MG non musk

Hi, my name is Dan, an outdoorsman construction worker type, who just returned home from icu being just diagnosed with MG and after 9 Plasmapheresis treatments to grasp the ability to breathe and swallow again. lol that seemed long winded.

Anyways, so far I am good spirited and feeling a little better although the diplopia causes some writing issues, there are benefits at times.
Anyways, the symptoms started abruptly about a year ago with double vision and have intensified to weakness fatigue, slurred speech, breathing issues, inability to swallow, choking, vomiting etc….
Now I am trying to learn what exactly I have, since my doc was not very coherent and transferred me to another I can’t afford.
All I know is it’s “the rare type MG non musk”….. says there is not much paperwork on it, a bunch of trial and error stuff. Who knows? Been a week since my last plasma pher treatment and it’s a mixed bag.
Anyways, any and all help in understanding about it is appreciated.
I should note, I am a very strong Christian and either way it works out I am in good hands.
Second note, I had to add Plasmapheresis to my spell check. Must be rare.
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