New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

Reply
 
Thread Tools Display Modes
Old 05-30-2014, 08:45 PM #1
Kaband2014 Kaband2014 is offline
New Member
 
Join Date: May 2014
Location: Boca raton, fl
Posts: 2
10 yr Member
Kaband2014 Kaband2014 is offline
New Member
 
Join Date: May 2014
Location: Boca raton, fl
Posts: 2
10 yr Member
Default New here and need some help right away

Got RSD/CRPS for about 5 months now...having trouble finding dr to get diagnosed it seems so simple I have all the symptoms in order and nobody will diagnose me. I know I have it it's obvious. Don't I need to get a nerve block soon or it's possibly too late?
Some don't subscribe to the different way I got verses the vast majority. Mine was caused by an initial highly charged anxiety emotional event, then 16 days later an outbreak of shingles, then few weeks later the beginning of a 5 week gain of 31 pounds and two watermelon leg edemas, went as fast as I could to every dr I have beginning with cardio reason was couldn't walk up steps without heavy breathing and I had triple bypass 2 years ago...all the heart tests fine so the bypass workout out well, then to pulomonologist and all good all together every kind of test was normal or negative...I couldn't figure out what was going on as I thought a series of maladies after shingles were all independent events ..then I found the RSD websites and as soon asi read the symptoms I knew instantly was hand in glove...took some diuretics to reduce the edema and that's whe all the pain started at first I just thought it was because nerves were waking up, every single ligament, tendon, foot part everything below my knees both sides bilateral and the same pain in all of it...after awhile dealing with. The feet few weekends just felt the numbing tingling in finger and that's whe it moved to I have both feet and both hands..I started to get worse and worse pain I moved the unbearable line further out each time until this past Sunday...it was completely different and I can't even call it pain it was beyond anything I could imagine. At the beginning I had some strength and I just stood up to it and tried to ignore it the I called it out tried to be macho and face it down...I did for about 20 minutes, then it just continued to wear me down, I lost a lot of energy,things took longer to do,I couldn't sleep had some short term memory and hearing loss, i noticed a lot of it just following the RSD support site ...anyway I've already been through the can't believe the alternate reality I'm in..I am trying to start physical therapy this week it's too long but I couldn't walk on feet but now my arms are just fading away like toothpicks compared with what they were, I definitely lost strength and also dexterity, hand strength all across the board. Can anybody clear up for me the importance and timeliness of trying to get nerve blocks now? I don't see how my pain can be SmP in that. I had no localized trauma...just the shingles infection which must have lit up my sympathetic nerves and my other flaming factors of highly charged upstate like a tinder box ready to explode and it did...
Kaband2014 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (05-30-2014), tamiloo (06-06-2014)
Old 05-30-2014, 10:42 PM #2
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 11,026
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 11,026
15 yr Member
Default

Hi Kaband2014,
Welcome to the NeuroTalk Support Groups.

I see you've posted on a thread in RSD Forum.

You may want to start your own thread as well so it's not overlooked.

Here's the link to the
RSD and CRPS Forum

At the top off all the threads on that page, to the left, there is a button that says New Thread. Click on that and make a title the same as you've done here on the New Members Forum. Copy and paste or make your new message and then submit message.

If you need any help, don't forget there is a
FAQ-Frequently Asked Questions
explaining more about how to use the forums.

There's also a forum that includes Shingles if you ever need that as well.
Lyme Disease, Shingles and Other Microbial Conditions

Chronic Pain Forum


All the best to you. I hope you find some answers.
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (06-06-2014)
Old 05-31-2014, 09:03 AM #3
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Kitt Kitt is offline
Grand Magnate
 
Join Date: Aug 2006
Posts: 4,440
15 yr Member
Default

Welcome Kaband2014.
__________________
Kitt

--------------------------------------------------------------------------------------------------------

"It is what it is."
Kitt is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (06-06-2014)
Old 06-02-2014, 12:15 AM #4
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Wink Hello & Welcome!!


Kaband,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (06-06-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 04:26 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.