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Old 07-11-2014, 11:19 AM #1
bddouglas bddouglas is offline
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Confused New and have no idea where to begin

Hello everyone!

My name is Brenda. I have chronic migraines and numbness and weakness on one side, vision issues, balance problems, cognitive memory and focus problems as well. I also have some pain, cramping, twitching, shaking...such crazy sypmtoms. I have been told by ER doctors that I had not had a stroke after CT's and that it was complicated migraines. My neurologist has been doing testing for MS since I had 2 white spots on my brain MRI in 2007 and now I have "lots" of white spots on my brain MRI.

The cervical and thoracic MRI's, the Visual Evoke Potentials, the Ultrasound of my carotids and the Doppler of the blood vessels in the head and the EEG were all normal. Now, I am just waiting on my follow up following my lumbar puncture. From what I can gather from the LP, it is looking like it is not MS. So, I guess it is going to be luck of the draw.

Thank you to everyone for allowing me to vent.
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Lara (07-11-2014)
Old 07-11-2014, 01:00 PM #2
Kitt Kitt is offline
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Welcome bddouglas.

Someone will be along to help.
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Lara (07-11-2014)
Old 07-11-2014, 01:05 PM #3
Breia Lee Breia Lee is offline
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Hi Brenda! Welcome to NeuroTalk!

I'm so sorry you are suffereing from such an array of symptoms without a diagnosis yet. I think most of us were in that same boat at one time or another..some of us went many years without an accurate diagnosis, like myself, so I for one can definitely sympathize. I hope they are able to pinpoint some causation soon and get you the relief you need.

Just wondering, have you been tested for lyme? I'm asking because there are symptoms of untreated lyme which mimic MS.
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Lara (07-11-2014)
Old 07-11-2014, 04:09 PM #4
Lara Lara is offline
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Hello Brenda,
Welcome to the NeuroTalk Support Groups.

Hopefully you'll know more after you receive the results from your LP.

I'm not really sure where to direct you but I thought I'd leave a couple of links in the meantime.

Headache Forum (includes Migraine)
Multiple Sclerosis Forum
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Old 07-12-2014, 10:39 AM #5
bddouglas bddouglas is offline
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Thank you for the links, Lara. I have access to the results of my LP, but I am clueless so I am waiting and waiting and hoping the 24th comes quickly. I am just worried it will only lead to more uncertainty and questions. LOL
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Lara (07-12-2014)
Old 07-12-2014, 10:35 AM #6
bddouglas bddouglas is offline
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Quote:
Originally Posted by Breia Lee View Post
Hi Brenda! Welcome to NeuroTalk!

I'm so sorry you are suffereing from such an array of symptoms without a diagnosis yet. I think most of us were in that same boat at one time or another..some of us went many years without an accurate diagnosis, like myself, so I for one can definitely sympathize. I hope they are able to pinpoint some causation soon and get you the relief you need.

Just wondering, have you been tested for lyme? I'm asking because there are symptoms of untreated lyme which mimic MS.
I have been tested for Lyme, Lupus, RA, and a number of other inflammatory things that I can't remember.
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Lara (07-12-2014)
Old 07-12-2014, 11:21 AM #7
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Hello bddouglas and welcome to NeuroTalk.

Quote:
From what I can gather from the LP, it is looking like it is not MS.
Unfortunately, it cannot be determined by the outcome of one single test if it's MS or not. Diagnosing MS needs to take the entire medical history/testing into consideration, as well as ruling out the many other causes for symptoms.

Quote:
I had 2 white spots on my brain MRI in 2007 and now I have "lots" of white spots on my brain MRI.
This (above) could possibly fulfill the " Dissemination in space and Dissemination in time." Your Neurologist will have a better understanding of your test results, medical history and neurological exam than I do.

This is one of many websites you can use to understand the McDonald Criteria for diagnosing MS:
http://radiopaedia.org/articles/mcdo...iple-sclerosis

Best wishes.
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Old 07-12-2014, 11:46 AM #8
bddouglas bddouglas is offline
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Thanks, Snoopy. I have looked at the results of the LP and I know some of the results may not be available to me online. Even the O-Bands were interesting and confusing since there were 3 that were also present in the serum sample but some were more prominent in the CSF sample.

I see my Neuro on the 24th, I had my LP on June 3rd...I am just getting impatient...lol
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