Hello,
I'm glad to find this forum and hope someone more educated than myself has the patience to read my post and shed some light on my situation.

I'm a 37 year old male with no family history of neurological diseases (plenty of heart disease but no neuro). Side note I have IBS (irritable bowel syndrome) dating back 20 years. I'm not overweight and like to consider myself healthy, except...

One year ago I ended up in hospital after an intense hockey game because I felt terrible; high blood pressure, headache/temple pain,dizziness, chest pain and heart palpitations throughout my body. They checked me out and sent me home basically saying "***** happens, but your fine". I was pretty stressed before the game so I'm blaming the event on that, even though the doctors didn't acknowledge the possibility.

Several weeks later while sitting at work in front of the computer the left side of my face went numb,"this is odd" I thought to myself. It persisted but didn't get worse until a few days later until it was my entire face, left hand, and legs. Next thought was "WTF is going on!!". I got up to walk and my legs felt like jello, I was getting dizzy spells, and just a feeling of being off balance (felt like my legs lost all coordination). Even looking at moving bath water made me woozy. One doctor said it was vertigo and gave me a prescriptions, it didn't help. My family doctor sent me to a neuro, did an MRI and EMG, both fine except "white matter" on the MRI which apparently is common but wasn't explained more than that. So I'm a couple months in with these symptoms and still no diagnosis. I even went to an ENT to check my inner ears, this was fine also.
Fast forward 8 months and things have gotten a little better on their own, great. Still get the symptoms but much lighter to the point I can shrug it off.

However a month ago more symptoms started, sigh tight chest, back and rib pain, difficulty breathing (feels like I need to yawn but can't and feel like it need to work harder to breath), twitching in my left pectoral and sometimes my eye, tenderness when touching other muscles...

So now I'm full on scared because of the new symptoms. Twitching and breathing problems from ALS? Muscle pain from MS? My irritable bowel mutated into my nervous system...haha(yes I try to keep the humor)
But what is wrong with me?? Is this all stressed induced or is there a problem.

Both my family doctor and neuro are on vacation so I either go the hospital or wait...I was once a calm guy, but now my nerves run rampant and get emotional about my health very easily (mostly because I have a 2 year old and another one the way).

Forgot to mention that a year before my initial symptoms (so 2 years ago) I had a few light head injuries and whiplash that didn't ramp up to much... Unless it's coming out now.

In summary I feel like crap but am trying to stay active; hockey and light biking.

I would really appreciate any constructive comments, opinions or suggestions.

Paul

Paul,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about what you are going through at this time. Click on the following forum for the head injuries and whiplash you have went through in the past, hopefully you will come upon a solution for your case.

Traumatic Brain Injury and Post Concussion Syndrome:
http://neurotalk.psychcentral.com/forum92.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

why don't you post in the traumatic brain injury room. maybe it has nothing to do with the head injuries. but maybe someone in that room can shed some light. i know personally some crazy things can happen with a head injury. but stay calm. don't let your mind wander. good luck.

Welcome Paul77.

Hi Paul,

Welcome to the NeuroTalk Forums.

Just so you don't worry too much about it unnecessarily, we all have white matter in our brains. It's when there is a problem with the white matter that you should worry.

There are many conditions that have the same symptoms and you have many varied symptoms. You need a knowledgeable doctor to sort it all out. It's good to have a trusted family doctor who has seen you over a period of years. Just my opinion, but sometimes they can pick up on issues faster because they're familiar with your history face to face.

Have you checked out the symptoms of dysautonomia?

Thank you for reading my post everyone. I wasn't sure which forum to post in since I have no idea the source of my health issues.

markneil1212 you're spot on, it might be from a head injury or not

Lara, i do have a good family doctor who I trust, however, sometimes I feel like I'm not being taken seriously. Same goes for my neurologist, it seems as though they brush off my symptoms. They rule out a few things but never diagnose me. Then I start to research on my own which leads me to things that scare the heck out of me like ALS, or Cancers

It's no fun being in the dark not knowing what's going on. As I sit writing this my face feels partially numb, my ribs and back are in pain, and I'm having difficulty taking a deep breath...

Darlene, I'll check out the other forums, hopefully I can find someone with common symptoms.

Boy am I having a bad day. My muscles are in pain, twitching left, right and center. My back is so tight it feels like my lungs are in a knot, and my emotions are up and down like a roller-coaster.

I'm sorry to hear that Paul.
I wonder if you tried some relaxation exercizes to help your anxiety.
If you're feeling really bad, you should call your doctor.

p.s.
Did you ever get to check out any info. about Dysautonomia?

Hi there... I'd get your vitamin D tested.

Low D can give alarming symptoms
By messing up your calcium metabolism.

This deficiency is very common and responds
Well to vit D3 (not the RX one doctors still
use which is D2.

Also get that B12 checked. You should be
At 400pg/ml. Doctors tend to call very low
Levels normal so get your actual numbers.

These two are common culprits for many
People in misery who can't get doctors
To listen to them.

I am on vacation with only an iPhone
So I cannot link things for you.

There is a vit D thread on our vitamin forum
And B12 thread on our neuropathy forum in the
sticky area.

Hi Lara, I decided to step out of the office and take a 5 minute walk right after I posted, nice sunny day today.

Funny you mention relaxation exercises, on my way back from my walk a co-worker asked why I was walking alone, I told him I was feeling a "little" stressed. He then went on for a good 10 minutes talking about his anxiety disorder and how my symptoms were very similar to his. It actually calmed me a little.

I have not looked into Dysautonomia. I'm not sure if its best that I continue to self diagnose. On the one part it may lead me to a real diagnosis. On the other, I easily jump to conclusion that I have said problem and begin to freak out thinking the worst.

My GP is on vacation until Monday but I'm going to a walk-in clinic tomorrow morning.

Thank you for replying, I'm glad someone is listening

Hi mrsD, I'll definitely ask my doctor tomorrow morning to get that checked. I appreciate you replying to my thread especially while you're on vacation.