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Old 07-31-2014, 10:29 AM #1
lizzieh lizzieh is offline
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Default I am a new girl

Hello Everyone , I am very new to this and new to neuropathy and very frightened as I am sure you all know well.

I have a question for Mrs D please. I have been reading the forums and you seem such a wonderful person, so helpful and knowledgable.

I have had what seems to be neuropathy for 7 weeks after taking metranidazole. I have pain in arms and legs and feed and tingling and burning. I have had nerve conductiion test which was normal plus examination by neurologist with sensory tests normal but I have the symptoms, and I am so frightened of the pain and sensations which seem to be getting worse or at least i feel as if they are. I have low energy and brain fog
I have started some supplements and have been checking your advice can I please trouble you to see if I am helping my condition.
I am taking two fish oil caps daily
2 magnesium glycinate wich equal 200mg
1 benfotamine 80mg
vitaminic C+ mag 2 grams
Probiotic with lacobacillus +biffidum
I am very sensitive to medication so of course wished I had not taken the doctors damn tablets but it was part of triple therapty for hpylori which also included amoxcillyn and lansaprozole ( i took 4 days of 7 day course but being so sensitive did the damage)

I am thining of adding lipoic acid and acetyl l cartnine to my above supplements

What else can I do please.

Being new to this does the answer ( if of course you have time) come to my email or on the forum.

I value your help and any other meembers

I wish you all well and send you all my very best wishes
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Old 07-31-2014, 12:53 PM #2
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Welcome lizzieh.

Someone will be along to help.
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Lara (07-31-2014)
Old 07-31-2014, 02:30 PM #3
Lara Lara is offline
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Hello lizzieh,

Welcome to the NeuroTalk Support Groups.

Just so you know, mrsD is on vacation right now and her internet is somewhat restricted but is able to get online to reply to posts from time to time. I thought I'd let you know that just in case you didn't get a quick reply.

You also may get more input from others if you repost over on the
Peripheral Neuropathy Forum

There is also a subforum at PN that has lots of helpful information.
PN Tips, Resources, Supplements & Other Treatments Forum
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Old 08-01-2014, 12:35 PM #4
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Lightbulb

Hi , there and welcome to NeuroTalk.

Recovering from metronidazole can take
Some time. But some studies do say recovery
Is possible.

I'd raise the benfotiamine to 300mg for a
Couple of months, as this helps with the
aldehyde excess metronidazole can cause.

Also the damage this drug causes tends to be
to the myelin of the axons. Some studies show
white spots to the myelin in the brain, for example.

So using nutrients that facilitate myelin repair
may be useful.
omega-3 in fish or Krill oil
Methyl cobalamin B 12
Methyl folate as Metafolin 800mcg daily
A good magnesium supplement (not oxide type)
some activated B6 called P5P

All help with this. You can find more suggestions
By Googling "supplements for remyelination"

I think acetyl carnitine may help too because
It is used successfully in other drug induced
Nerve damage issues. (Eg:chemo and antiretroviral treatments)
Start at 500mg a day and you can increase to 2 grams
A day in divided doses .
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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Lara (08-01-2014)
Old 08-03-2014, 05:42 AM #5
lizzieh lizzieh is offline
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Default Thank You So Very Much

Quote:
Originally Posted by mrsD View Post
Hi , there and welcome to NeuroTalk.

Recovering from metronidazole can take
Some time. But some studies do say recovery
Is possible.

I'd raise the benfotiamine to 300mg for a
Couple of months, as this helps with the
aldehyde excess metronidazole can cause.

Also the damage this drug causes tends to be
to the myelin of the axons. Some studies show
white spots to the myelin in the brain, for example.

So using nutrients that facilitate myelin repair
may be useful.
omega-3 in fish or Krill oil
Methyl cobalamin B 12
Methyl folate as Metafolin 800mcg daily
A good magnesium supplement (not oxide type)
some activated B6 called P5P

All help with this. You can find more suggestions
By Googling "supplements for remyelination"

I think acetyl carnitine may help too because
It is used successfully in other drug induced
Nerve damage issues. (Eg:chemo and antiretroviral treatments)
Start at 500mg a day and you can increase to 2 grams
A day in divided doses .

Dear Mrs D

THANK YOU SO VERY MUCH, for your reply especially as you are on holiday.

I am so very frightened as I know everyone on this site is or certainly has been and I really due appreciate you taking this time.

I am taking B!" methylcobalmin 1000 mg a day
Should I take a complex vit b that includes P5P B6 or one on its own
Is there anything I can do with diet, I am gluten,yeast and sugar, alcohol free.
I am taking 2 EPA fish oil capsules a day.
Shall I continue with the alopoic acid.
I will start the acetyl l carntnine.
I am very sensitive to medication so I am trying to be sensible even with supplement.
i
I will of course google remylination

ThankYou Again, you are so very kiind.
I wish you a happy vacation

My Very Best Wishes

Liz x.
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Old 08-03-2014, 05:56 AM #6
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Lightbulb

NOW company makes a good P5P.

It is difficult finding it in mixture products.

Make sure you take the B12 on an empty
Stomach for best absorption.

If you want more I' d chose the acetyl carnitine for now.

But keeping thing simple in the beginning is
Best. That way you may see improvements
And not need other things.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

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Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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Old 08-01-2014, 02:29 PM #7
lizzieh lizzieh is offline
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Default Thank you

Quote:
Originally Posted by Kitt View Post
Welcome lizzieh.

Someone will be along to help.
Hello Kitty,

thank you very much for your reply, good to meet you
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Old 08-04-2014, 06:23 PM #8
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moonstar54 moonstar54 is offline
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moonstar54 moonstar54 is offline
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Default Hi everyone, I'm a newbie here

I just wanted to introduce myself. I have been on other forums & stumbled across this one and decided to join. I will explore and see what I can find useful or if I can contribute to anyone.

So, see you around the forums. Thanks!
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Old 08-04-2014, 07:59 PM #9
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Welcome moonstar54.
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Old 08-05-2014, 12:47 AM #10
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Wink Hello & Welcome!!


moonstar,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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