I was just diagnosed on Friday with Pseudotumor Cerebri.
No one would listen to me, I knew something was not right.

I went to the emergency room countless times, in so much pain and pressure.
Nothing touched it.
I thought I was going crazy

Finally I got in with a neurologist that believed me and immediately ordered another LP, the ER doctor did not want to do it I could tell.
As soon as I had the LP for the 2nd time my head pressure and pain was almost gone.

I was told to lose weight and was put on Diamox

Im glad I found this site, I can relate with so many of the stories being told.
I'm scared, tired of the constant pressure,pain, my ears swooshing all the time.

I just wish the Drs and nurses would listen when situations like this come up.
I didn't want the drugs, nothing works
I just wanted help.

Hi chloe,
Welcome to the NeuroTalk Support Groups.

I'm sorry to read about your experience, but I am glad that someone finally listened to you.

You may have read some of them already before registering, but I just wanted to suggest that the best way to find all the various posts regarding Pseudotumor Cerebri is to use the Forum Search Feature that I'll post below.

There are posts scattered around quite a number of the forums here, not all in one particular place. There are actually a number of threads here in the New Members area too.

NeuroTalk Forum Search

Just type in Pseudotumor Cerebri.

A tip for the search feature is to click where it says "posts" rather than "threads" down at the bottom left. You'll find more that way.

You could also post over in
General Health Conditions and Rare Disorders Forum

If you need any help with the forums please just post here again and someone will help you out.

Welcome Chloe51769.

chloe,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene