Somehow I got on the PD forum annd sent a note and received some very helpful replies. Listened to a PDFoundation expert brief about progress of this disease and wish I hadnt because the stats are scary..just told sibs and 3 friends yesterday and feel ok about that but want no hovering....trying to take things one day at a time which is prob what we are all doing..my doc said keep up my usual activities which I'm doing but feel my gut is in a knot and head in a fog... guess this will eventually pass..hope for more info after brain MRI next Wed.... thanks for this space to vent...Elaine
Sorry for misspelling diagnosed

Hi Elaine,
It is totally understandable that you would be distressed about your diagnosis.
I'm glad you've told your family. If they start to hover you can just ask them nicely to "back off a little"

It would be very difficult to not think about what the future holds especially this week so close to just being diagnosed but please take the advice of the members there in PD forum and take each day as it comes for now.

Vent any time you want.

Elaine,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

I appreciate your kind words..my mri brain scan came back with no abnormalities so I meet with neuro.doc next week to discuss whats next with the PD. I really appreciate all the helpful replies I've received..thank you

Hello Elaine,

All the best with your Neuro visit next week.
Write a list of everything you need to ask.
It's easy to forget things when you're there in the moment.

take care of yourself.