[amkxoxo]

I'm a newbie on here and felt that I could get some insight and advice into what I may have. I'm only 21 and am positive I have complex regional pain syndrome. I have a fear of medical things and have been healthy my whole life so avoided doctors at all costs. About a year ago I fell and broke my right foot. About a week into the injury and me not walking at all I started having weird symptoms. My foot was intensely burning like it was on fire, I just figured it was my foot healing. I didn't walk for 8 weeks and symptoms increased. My skin got all wrinkly like an old womens hand, it turned rashy purple and red, the burning, and extreme coldness. The coldness also started spreading up my right leg to my thigh. When I went to the doctor he was crazy. My foot hadn't healed at all and he insisted on doing surgery on me. I said no. When I told him about all the symptoms he said it was no big deal and I was fine. I went for a second opinion in which I was told I didn't need surgery and that would make me ten times worse. They were heavily concerned about my symptoms claiming they weren't normal but could be CRPS. I got the proper care and after 5 months my foot healed. I have been walking and active ever since but I still have some symptoms. Some have gone away and other have shifted.

I still have coldness which is in my original broken foot and now in my opposite foot and in my hands. I get the burning but its at random and its painful but not unbearable. The burning seems to be able to happen anywhere on my body. I mostly get it in my feet, hands, and abdomen. But if I say hold my hand on my cheek for too long my hand will burn and so will my cheek until I remove the area. I cannot wear shoes all day long because the containment of my feet makes me feet burn. The same with socks and blankets at night. Wind hitting my skin makes it cold. If I do not move for a long period of time areas will get cold or start to burn. Like talking on the phone. After a while the hand holding the phone turns ice cold and stiff, due to lack of movement. Not always but when I shower sometimes the water makes my feet burn. Some days when the weather is bad like wind and rain, my whole body feels weak and tired. I am sluggish and not myself. I just don't feel right. Some nights I feel like I don't sleep well. I toss and turn a lot and seem to require more sleep.

I went to a neurologist who was recommended. He did a full exam but he felt I didn't have CRPS. Well what else could it be? He insisted I had genetic raynauds. I kept telling him this didn't start until my injury. He wanted to stick me and do all tests and I didn't want that. I haven't been back and wont go back to him. I don't know what to do. I think my symptoms have plateaued. I would like to have a firm diagnosis. I am afraid the longer I have this is it going to get worse? I am scared.

[Lara]

Hi there,

Welcome to the NeuroTalk Support Groups.

Here's the link to the
RSD and CRPS Forum

There are posts regarding Raynaud's in quite a large number of the forums including RSD/CRPS and Peripheral Neuropathy and others. Personally, with your history, I'd repost in RSD/CRPS forum and go from there.

There's also a useful forum search feature here.
Just use a keyword such as "raynaud's".

http://neurotalk.psychcentral.com/search.php

all the best

[Kitt]

Welcome amkxoxo.

[Darlene]

amkxoxo,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene