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Old 10-02-2014, 04:48 AM #1
UncleBob UncleBob is offline
Junior Member
 
Join Date: Oct 2014
Location: Oakland, Oregon
Posts: 10
8 yr Member
UncleBob UncleBob is offline
Junior Member
 
Join Date: Oct 2014
Location: Oakland, Oregon
Posts: 10
8 yr Member
Cool Scared, confused and a little angry

First of all I would like to say hello to everyone and thank you for your time and input on these health issues that everyone seem to have these days.

My name is Robert Horne and I am from Oakland, Oregon USA. I have other health issues that have allowed my disability SSDI for a period of 2 years in which my doctors were to resolve my major problems and return me as a productive member to society. On Sept. 26th 2014 I was officially diagnosed with Myasthenia Gravis. After reading very little about this disease I am sure that I have had this for several years now.

After seeing the neurologist and being told that I definitely have this incurable disease, I was prescribed Mestinon 60mg 4 times a day and Mestinon 180mg (timespan) at bedtime. Now, from the research I have done online that seems like a (break-neck) introduction to such a nasty drug with known horrible overdose side effects. My question to you is... Should I question my neurologists ability to treat me at this point or is this not an unusual First Dose for a 6' 2" male at 46 and 290 lbs.? Within 24 hrs. I was twitching, cramping, lost continence, puked 4 times, had pixilated vision, could not walk and felt as though I had food poisoning. I started this med. on Sat. and of course doc office closed Sun. so I stopped taking it Sun. Called Doc office on Mon. to speak to a nurse that told me to do it again!
Now I was born at night... but not LAST NIGHT! I told her #@%& THAT!
Today is Thur. morning still no call from the doc and I feel worse than I ever have.

I am embarrassed to admit it being a man... but I'm scared as hell!! I know very little about this MG and everyone around me acts like it's no big deal. My right eye is almost shut and wanders off on me... I can barely walk... I stop breathing in my sleep... when I can sleep... and I just got a letter from SSDI saying my benefits will end Jan. 1st 2015! Right about the time I get good and dependent on these new expensive drugs.

Hope you have a better day Than Mine,
UncleBob

P.S. Sorry if I come off like Lewis Black
or Bobscratch-Goldfart
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