Hi, my name is Stacy. I have been diagnosed with multilevel perineural cysts essentially in all the levels of the thoracic as well as lumbar spine. The largest cysts right SI, left SI, right S2, and left S2, and centrally in the S2-3 region. These cysts are causing blatant compression of adjacent sacral nerve roots. These cysts are also causing significant expansion of the sacrospinal canal as result of sacral bone erosion/thinning.

I managed to find a great specialist by turning to the internet. Unfortunately at this moment, I am not getting any co-operation from my GP. She tells me my insurance will not approve surgery for two reasons:

1 - surgery is invasive with not a high enough good outcome rate
2 - dr is out of California, there for they will not pay.

Any one have any suggestions?

Welcome StacyFischetto.

Stacy

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Looks like you are finding your way around, there are wonderful fellow members there to answer your questions.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene