[stella7]

My husband began having seizures in 1999 at the age of 29 for no know reason--- grand mals for a few weeks, then partial complex ones thereafter. EEG showed activity after the 1st grand mal. MRI's showed nothing. We tried many medications, but he always had break through seizures. He then over the next 10 years developed a host of other symptoms--bladder issues, vision changes, balance problems, depression, air hunger, rash, light and noise sensitivity -- 22 symptoms in all and the seizures continued.--- we travelled from doctor to doctor at the best hospitals in New York City--no one could figure out what was wrong. In 2011 he was diagnosed with late stage Lyme disease, Bartonella, Babesia and Brucella. He did a year and a half of various antibiotics, oral as well as intravenous, prescribed by an excellent Lyme literate doctor in upstate NY. He also has been on a regime of supplements, herbs etc, again prescribed by the Lyme doctor was well as 2 others that gave 2nd opinions. He also uses a Rife machine, which has been a big help-- I'm not going to explain what a Rife machine is to those who don't know what it is--its too complicated for this post.

My husband is now very very much better--- most of the 22 symptoms are gone, but the seizures, although different, continue. The doctors believe that Bartonella is still active and is causing the seizures. I'm not so sure. The seizures are tonic in nature, mainly now at night-- his limbs get very stiff, sometimes he is half conscience and wacks the bed with his legs and arms. He also hums rhythmically and grimaces. I give him liquid Ativan spray in to his mouth to stop them. Mostly doesn't remember them in the morning.

I am looking to see if any there is anyone with a similar problem.

x Stella7