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hello out there -- new with PPMS

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Old 06-06-2007, 08:55 PM #1
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Default hello out there -- new with PPMS
I'm a newbie-diagnosed last yr. with primary progressive M.S. at the tender age of 61. Anyone out there with this diagnosis? I find lots of RRMS but not other forms.

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Old 06-06-2007, 10:19 PM #2
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I never really got to "enjoy" the RRMS stage......by the time I received my dx my neuro was fairly sure I had moved on to SPMS. I was 25, and now am 29, and feel like in many ways I can see how my MS is progressing almost textbook......not that there is a definite pattern with MS......just mine has been pretty steady, not quite as unpredictable as the RRMS stage. Forgive me if that makes no sense......its late and I'm sleepy! LOL~~~Jess
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Old 06-07-2007, 09:00 AM #3
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Welcome, bbarbick! There are some friends in the MS forum but I'm not sure how many are PP. I'm SP now, but started as RR. Come join us!
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Old 06-07-2007, 06:51 PM #4
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Welcome....I am RR MS. Come on over to the MS Forum. Hope to see you there.
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Old 01-27-2008, 06:52 AM #5
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Quote:
Originally Posted by bbarbick View Post
I'm a newbie-diagnosed last yr. with primary progressive M.S. at the tender age of 61. Anyone out there with this diagnosis? I find lots of RRMS but not other forms.

bbarbick
Hi there,
You and I have something in common. I, too, was diagnosed with PPMS just shy of my 61st birthday in 2003. I am a little ahead of you in age
There are a few of us with late onset PPMS.
Welcome!
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Old 01-27-2008, 08:03 AM #6
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Hello,
Welcome to Neurotalk, if you need anything just ask, I will try and help you if I can
Thanks
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Old 01-27-2008, 01:54 PM #7
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welcome!!
I'm PPMS too, diagnosed at age 46 and 1/2. 6 years have passed now. Ambulatory with walker but see a power chair soon.
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Old 01-27-2008, 11:29 PM #8
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Hi bbarbick dx`ed with PPMS in 2005 54 years old.
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