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06-07-2007, 03:22 PM | #1 | ||
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New Member
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hi ALL IM NEW ON HERE I HAVE NF AND HAVE 3 CHILDREN WHO ALSO HAVE NF MY CHILDREN HAVE THIS QUITE MILD , I HAVE LOTS OF PROBLEMS WITH MY NECK C5 AND C6 , I SEEM TO HAVE LOTS OF TINGLING IN MY HEAD AND RIGHT HAND GOT TO SEE DOC IN JULY . I HAVE THE CALS AND TUMORS ON THE SKIN I HAVE SLIGHT PLIXFORMA ON FACE AND RIGHT OF CHEST, AND RIGHT ARM JUST THOUGHT ID SAY HI TO ALL X i have neurofibromatosis
Last edited by maria mc; 06-07-2007 at 04:19 PM. |
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06-07-2007, 05:28 PM | #2 | |||
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Co-Administrator
Community Support Team
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Hello Maria,
I hope you can find a good dr and are able to get good treatments for your family. here's some info and the link for the main forum topic page - http://neurotalk.psychcentral.com/sh...ad.php?t=18185
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06-07-2007, 06:24 PM | #3 | ||
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Junior Member
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Hi Maria, my daughter has NF, too. You can find some excellent information here, but you might also check the children's tumor foundation (formerly the national nf foundation) bulletin board at www.ctf.org
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06-08-2007, 04:44 PM | #4 | ||
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New Member
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thank you iv bee on ctf BB found it very useful how olds yur daugher and how is she doing and how do you cope with her having nf sorry for all the qustions x
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06-08-2007, 06:52 PM | #5 | |||
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Wise Elder
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Hi, Maria, welcome!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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04-16-2008, 02:13 PM | #6 | ||
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Junior Member
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heh maria I have NF 1 as well. So do my 2 children. My sons case is not that mild. He is 6 my baby is just 1 as of April no signs except for cals
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04-16-2008, 06:44 PM | #7 | |||
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Legendary
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Hi there Maria, I'm sorry to hear about your's and your children's problems. On the other hand, as those are the reasons that have brought you here to us, I guess it's been a Blessing in disguise, 'cos we wouldn't have got to meet you other wise.
Hopefully you'll get to know some of the wonderful, supportive members here, and don't be shy at asking questions because we're all happy to help out in any way we can.
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