[EnglishDave]

Hi to all from Sunny England!
I have been disabled by accident (crushed vertebrae etc) and neurological hypersensitivity, numbness and degeneration for 24 years. To cope I have to take Tramadol, morphine, ketamine and Topiramate for chronic cluster headaches every day. I have infusions of Lidocaine 4-weekly.
14 months ago, whilst driving, I suddenly developed double vision which scared the hell out of me - everything was suddenly on my side of the road. The wheels of the Health Service can drag over here and it was just last month I was told the double vision is caused by a lesion running right through the middle of the occipital area of my brain. As such, this is a permanent state, worse at distance, when moving and at low light.
As an aside they also found a fair sized arachnoid cyst at the base of my brain.
For the double vision, eye patches or fogged-out lenses don't help as eye dominance switches and my brain doesn't seem to cope.
Basically, what I'm asking is if anyone else has had any neorological issues causing vision problems, and how they coped. All I had in my life was the little bit of freedom I had in my car and my photography, both have now gone.

[Lara]

Hello Dave from sunny England.

Welcome to the NeuroTalk Support Groups.

I'm really sorry to read of the reasons that bring you to these forums and many people here will understand how you are now feeling about losing your independence with your car and your photography.

I'll post a few links below where you may want to either read or repost your message. Just click on those links and that will take you to the various forums I've posted.

There was another new member here this week looking for others dealing with an arachnoid cyst. That thread is about 5 down the list here in the New Members Introductions area and also over on the General Health forum.

Chronic Pain Forum
General Health and Rare Disorders

There are lots of people throughout the forums dealing with various types of vision problems.

You could try a search in the forum search feature if you wanted. Same with arachnoid cysts.

Forum Search Feature

Have a look around the forums and you may find other ones.
NeuroTalk Forum Index

take care there.

[EnglishDave]

Thanks for the greeting Lara, I will certainly look around properly now I have registered. I have been reading the posts from your wonderful members for a.few weeks and now I can interact properly - although I spend more time deleting to re-type due the double vision and shaking:-P

[Kitt]

Welcome EnglishDave.

[Lara]

You're welcome.

Might be time to start thinking about some speech recognition software. That would make it much easier for you now and in the years to come.

My son needed it at one time when he was little. His was Dragon naturally speaking but I would imagine they have improved their software heaps in the past 20 years.

There is a computer forum here too. You could ask there if you ever want to go down that road. I'm sure a lot of people here use them.

take care.

Originally Posted by EnglishDave

Thanks for the greeting Lara, I will certainly look around properly now I have registered. I have been reading the posts from your wonderful members for a.few weeks and now I can interact properly - although I spend more time deleting to re-type due the double vision and shaking:-P

[Darlene]

EnglishDave,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[visioniosiv]

Hola EnglishDave. Just reaching out to say hey. I like your posts - you're one heck of an inspiration.