[Melodi]

Hi I am new to this forum and would like some information on SFN. I believe I have it but it has not been confirmed with a biopsy.
I am not sure whether to do this---I have made an appt. with my doctor in feb. to do it. I have stinging, burning, and often electrical type feelings everywhere but my chest and stomach. Often it is a pins and needles type feeling. I have been to 3 neurologists and have Been on gabapentin & valium with a year practically of improvement but I just recently relapsed and I feel like I am back to square one again.

Has this happened to anyone? Those of you with this how are you managing? Thanks for any information.

[Kitt]

Welcome Melodi.

[Lara]

Hello melodi,

Welcome to the NeuroTalk Support Groups.

We have a
Peripheral Neuropathy forum

There is also a subforum
PN Tips, Resources, Supplements & Other Treatments
where you can find lots of information about neuropathy.

[Darlene]

Melodi,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Healthgirl]

Originally Posted by Melodi

Hi I am new to this forum and would like some information on SFN. I believe I have it but it has not been confirmed with a biopsy.
I am not sure whether to do this---I have made an appt. with my doctor in feb. to do it. I have stinging, burning, and often electrical type feelings everywhere but my chest and stomach. Often it is a pins and needles type feeling. I have been to 3 neurologists and have Been on gabapentin & valium with a year practically of improvement but I just recently relapsed and I feel like I am back to square one again.

Has this happened to anyone? Those of you with this how are you managing? Thanks for any information.

Hi Melodi,
I was just diagnosed with it and it still seems like back to square one. It is only a symptom of an underlying process, so personally I was more upset when I got the official "diagnosis". Its like getting an injury, going to the doctor and being told, "You are injured". Anyway, no matter how many doctors it takes, don't give up! I am managing by being hopeful and trying different things. This site is great and has such experienced people and great info. It helps so much to know your not alone.

[Jfhbiff]

Originally Posted by Melodi

Hi I am new to this forum and would like some information on SFN. I believe I have it but it has not been confirmed with a biopsy.
I am not sure whether to do this---I have made an appt. with my doctor in feb. to do it. I have stinging, burning, and often electrical type feelings everywhere but my chest and stomach. Often it is a pins and needles type feeling. I have been to 3 neurologists and have Been on gabapentin & valium with a year practically of improvement but I just recently relapsed and I feel like I am back to square one again.

Has this happened to anyone? Those of you with this how are you managing? Thanks for any information.

Hi Melodi. I was diagnosed with it back in November after a skin biopsy. Not really sure what to do about it. It is strange, I don't seem to have any of the symptoms I have read about. I just have some walking difficulties. Maybe I am very lucky. Maybe pain is coming in the future for me.