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Old 01-05-2015, 06:28 PM #1
remotetime remotetime is offline
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remotetime remotetime is offline
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Join Date: Jan 2015
Posts: 9
8 yr Member
Default Thanks, that's interesting. My nephew's

Quote:
Originally Posted by Kitt View Post
Hi,

Vitamins are not a help. There is no magic bullet for CMT.

The only advantage is knowing what you have for certain. You also can deal with the symptoms as they come along. Yes, there is no cure/treatment for CMT at the present time. However, lots of research is already being done. It has been done and is going on. I doubt in my lifetime there will be any cure/treatment for CMT.

Each child has a 50/50% chance of getting CMT. As I said, symptoms can vary greatly even within the same family.
neurologist, who gave him a clinical CMT diagnosis told my nephew and his family that vitamin C could slow progression. That was some time ago, but I started taking it anyway. It's now known not to help? I didn't check newer research.

Assuming that is my problem.
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Kitt (01-05-2015)
Old 01-05-2015, 06:38 PM #2
Kitt Kitt is offline
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Kitt Kitt is offline
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Default

Quote:
Originally Posted by remotetime View Post
neurologist, who gave him a clinical CMT diagnosis told my nephew and his family that vitamin C could slow progression. That was some time ago, but I started taking it anyway. It's now known not to help? I didn't check newer research.

Assuming that is my problem.
They have done numerous trials and it does not help. These trials are for people who have CMT1A. Here is just one trial. There are many more.

http://www.muscular-dystrophy.org/re...-tooth_disease
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Last edited by Kitt; 01-05-2015 at 07:23 PM.
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