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01-05-2015, 03:31 PM | #11 | |||
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Legendary
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CMT -
I saved something in my Notepad that I read the other day. This is from our Health News Headlines in December http://neurotalk.psychcentral.com/thread213689.html Pharnext drug shows promise in neurological disease with no treatment http://news.yahoo.com/pharnext-drug-...010044346.html |
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"Thanks for this!" says: | Kitt (01-05-2015) |
01-05-2015, 05:14 PM | #12 | ||
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Grand Magnate
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Actually there are about 2,500 people world wide with CMT. 150,000 in the U.S. alone. Treatment/cure has a long road ahead. Many, many types and subtypes of it. It's considered an orphan disease so not much interest for companies to make a drug where so few, so to speak, would use it. And it would take a long, long time to do it.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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01-05-2015, 06:28 PM | #13 | ||
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Junior Member
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Quote:
Assuming that is my problem. |
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"Thanks for this!" says: | Kitt (01-05-2015) |
01-05-2015, 06:38 PM | #14 | ||
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Grand Magnate
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Quote:
http://www.muscular-dystrophy.org/re...-tooth_disease
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." Last edited by Kitt; 01-05-2015 at 07:23 PM. |
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"Thanks for this!" says: | remotetime (01-05-2015) |
04-10-2015, 08:02 PM | #15 | |||
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Grand Magnate
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Hi remotetime
The very technical information in this link might help if you decide to approach Athena Diagnostics for genetic testing concerning Charcot-Marie-Tooth disease. http://ghr.nlm.nih.gov/condition/cha...-tooth-disease
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"Thanks for this!" says: | Lara (04-12-2015) |
04-11-2015, 09:42 AM | #16 | ||
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Grand Magnate
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A good site. However, DNA blood testing is expensive. And if they have to test for all of the types that they can now test for it really is expensive. And even if DNA testing does not come up with a type, it could mean that another type comes into play.
remotetime should call them and see how they might be able to help. http://www.athenadiagnostics.com/content/index.jsp
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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"Thanks for this!" says: | Lara (04-12-2015) |
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