[dac1223]

Hello:

I'm a new member.

I'm curious whether anyone has seen peripheral neuropathic issues/weakness come on tied to an enlarged uterus (not sciatica)? What would be the best forum for me?

A year ago, we found a “large” fibroid and several others through ultrasound in a search to find the source of my coccyx pain (no fracture in X-ray). My inverted uterus was also enlarged. OBGYN suggested the coccyx pain could be related to pressure from the fibroid and we confirmed a possibility (no guarantee) with pain during pelvic exam pressure in the area. We agreed to monitor; hysterectomy or myomectomy were suggested.

Even though other side complications presented, I did not proceed with exploring surgery options because my coccyx started to go away & I since, have been consumed with resolution of other symptoms (possibly related). I am revisiting this now.

My biggest concern is recent paresthesia symptoms (started in fingers) that developed into considerable limb/extremity weakness and a myriad of neuropathy and other odd issues over the course of 6 weeks. My hand gets swollen. Sometimes, I am stiff or get joint pain (hands mostly). I can’t lift my body easy or manipulate objects, and have poor coordination. I also have had frequent urination, bowel changes, chest tightness (EKG, chest X-ray ok) coming and going, issues with my voice (hoarse) intermittently and a constant metallic taste (no antibiotics). My skin shrivels fast in warm bath water (not hot) and my body gets inflamed (think).

Blood work (thyroid, nutrients/iron/B12, protein and basic panels) and Neurological tests (EMG, EEG, SEP) have found no leads on the neuropathy except inflammation (sed rate@40). I just took a Lyme test and retook my ANA (originally fine along with Rheumatoid factor) and Sedimentation (4 weeks later from original testing); I am awaiting results. My neurologist wants me to seek second opinion. He does not think MS, but has no idea.

No spinal tap or skin biopsy have been done; will wait for rheumatologist appt. &/or other neurologist. I had a virus which had me bedridden weeks ahead of this onset and also the flu shot for the first time.

Given the returned coccyx pain, a spinal MRI was ordered. They found my uterine issues progressed (uterus size unknown). It was suggested that I see my OBGYN, conduct a pelvic ultrasound, & this was unrelated to the neuropathy issues. I see him next week.

My head is not wrapped around separate issues, given how it presented and timing.

Thank you in advance.

[Kitt]

Welcome dac1223.

[Lara]

Hello dac1223,

Welcome to the NeuroTalk Support Groups.

I'm sorry that your health problems are so complicated at the moment. It's good that your doctor has suggested a second opinion though.

I'll post a few forum suggestions for you below. You just need to click on the links.

Peripheral Neuropathy Forum

Spinal Disorders & Back Pain Forum

Women's Health Forum

If you're reposting on Peripheral Neuropathy Forum make sure you mention what you wrote that I've quoted below.

I had a virus which had me bedridden weeks ahead of this onset and also the flu shot for the first time.

all the best to you.

[dac1223]

Thanks again!

[Darlene]

dac1223,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene