My name is Shirlene, I am here because of my sister Patty. She has RSD. She was diagnosed about 6 years ago and we think she had this disease for 2 years before that. She was a real estate agent and fell through a stair and broke her ankle...which never healed and the disease has spread to her other ankle, both feet, both legs, both arms and her lower spine. She has most recently been put on medical marijuana to help her get some sort of appetite back, she has become basically malnourished. So far we have seen very little improvement.

So loooooooooooooooong story short, I as well as her husband are doing everything in our control to find ways to help her. I have moved "home" to CT from NY to help take care of her, however it has become painfully clear that she needs constant care. The days are very long while we work and her kids are at school, she will and does not even move while no one is there. My problem with this is I have to work in order to pay my bills while I live here. Obviously her husband does and he has been such an angel taking over all of her duties, including taking care of the kids. So, I am trying to find a way to take care of her. Does anyone know of grants or any kind of funding that would help pay me just a minimum of money to help save her. She has Medicare but they do not allow family members to get paid for this type of service. Which, I find insane but I cannot figure out how to balance all of this. I appreciate any and all help possible. Thank You