My name is Lars-Henrik Nilsson, 49 years old and living in Sweden. I had a mean tumour in year 2000, after operation and chemotherapy (2 types and thalidomide). After a while I started to feel num under one of my feet’s. Also I felt the sticky feeling. This became worse and after a couple of years it spread to my other foot. I got a referral to another doctor, were I got the diagnosis Polyneuropathy, and my ordinary doctor said that sadly there is no treatment for Polyneuropathy cased by chemotherapy. I went on-line to search for ways to treat the disease. I found something called CIDP, which I thought had the same scenario as my disease. But when I visited another doctor about this, she confirmed that there is no treatment for the disease, when it comes from using chemotherapy, we cannot stop it, only delay the progression.
My question is this really true? Is there anybody on this forum that has the same diagnosis as I have and have got a treatment who stopped the decease? What is polyneuropathy caused by chemotherapy called, (like CIDP above)?
I would very much appreciate anyones thoughts about this.