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New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
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#1 | ||
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Junior Member
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Hi
![]() So that's my story in a paragraph. Of course, if anyone here has similar symptoms I would love to hear about your experience. |
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#2 | ||
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Legendary
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Hello and welcome to the NeuroTalk Support Groups.
We have some very knowledgeable members who post on the Epilepsy Forum Perhaps if you repost over there you will get some ideas. All the best for your Neuro appointment on Tuesday. |
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#3 | ||
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Junior Member
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Thank you, Lara.
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"Thanks for this!" says: | Lara (03-15-2015) |
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#4 | ||
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Grand Magnate
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Welcome PoppyRoad.
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__________________
Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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#5 | |||
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Senior Member
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Welcome Poppy,
In another time, in another culture this may have been viewed as a Divine gift allowing you to experience the mystery and beauty of the world. I am glad your CT was normal. If they don't figure this out after your work up and can't get the symptoms controlled take it for a symbol of specialness... Hoping you find relief soon, Littlepaw ![]() |
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#6 | ||
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Junior Member
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Thank you Littlepaw and Kitt.
Littlepaw, my wonderful psychiatrist said the same. If I had others who were like me, it would make a difference. The worst part of this is feeling so very isolated. |
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#7 | |||
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Senior Member
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You have landed in a soft place. Even if there isn't one single person on the forum with the same symptoms we all understand suffering, uncertainty, medical mysteries and the feeling of isolation. Come here when you need to vent or need compassion or commiseration. You are no longer alone.
Take care, Littlepaw ![]() ![]() |
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"Thanks for this!" says: | AndromedaJulie (03-17-2015), Lara (03-16-2015) |
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#8 | |||
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Legendary
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PoppyRoad,
![]() Lara gave you a forum to check into, there are some fellow friends to assist with you, including myself, with questions. Here are some suggestions for epilepsy: My advice to you is to start seeing an Epileptologist at an Epilepsy center you can find these Drs. at large hospitals or university hospitals these Drs. specialize in epilepsy. Start keeping track of each time a possible sz. happens write down what time it happens on a calendar along with a description of the sz. this will help the Dr. see if you have a pattern in your sz.Try taking vitamin B12 1000 mcg. once a day for adults. Cut back on the carbs and starch foods and stay away from anything with nutra sweet because the nutra sweet causing more electrical activity in a persons brain and can trigger sz. sometimes. Something else you should do is if you go to the theater for a movie, shut your eyes and turn your head when they have flashing light coming out. This can cause a seizure to start. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. ![]() Darlene ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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#9 | ||
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Junior Member
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Thank you, Darlene.
I saw the neurologist and did not click with him at all. He lacked empathy and seemed to make absolutely no effort to understand the symptoms I was explaining. He said he "won't do an EEG" as long as I am on "all the medications" - as if I prescribed myself medication, as if I am to blame for being on meds. I explained to the MD that I am on meds because of the symptoms. He just shrugged. This, after seeing a psychiatrist a few days ago (the one who referred me to the neuro, and whom I feel is a very caring doctor)...a psychiatrist who kept telling me that she doesn't believe I am taking enough medication to treat my symptoms. Ahhh...a big waste of my day and a 50-mile trip. I did message my psychiatrist and let her know that I found the neurologist very unhelpful. |
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#10 | |||
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Magnate
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PoppyRoad,
This is exactly what gives Neuros a bad reputation everywhere. For years I saw different ones in the same Clinic EVERY TIME I had an appt. Only one was helpful, all had their own differing ideas on meds, they never engaged because they would be gone by my next appt. Hopefully, seeing the top Consultant next week - necessary to interpret my brain MRI, and to bring up other issues - will resolve this problem. You should not give up on seeking the right Dr to give you the correct treatment. I have been lucky, I have an excellent Pain Management Team and - until now - have not needed to go back to a Neuro. The answers are out there. Dave. |
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