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Old 03-14-2015, 08:26 PM #1
PoppyRoad PoppyRoad is offline
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Default Hello from Northern California

Hi I've joined NeuroTalk because I am having symptoms of what my psychiatrist believes is some type of seizure disorder. The main symptom I experience is not new; it has been around for most of my life. The symptom is that I sense everything in my environment as unreal, as though I am standing behind a glass wall watching the world. At the same time I have a very powerful sensation of everything (even inanimate objects) being charged with a "life energy". I have had a CT scan (brain) and it was, thankfully, normal. I will be going to an appointment with a neurologist on Tuesday. For now my p-doc has increased my Klonopin to 3 mg. per day because she believes the k-pin is acting as an anti-seizure medication for me.

So that's my story in a paragraph. Of course, if anyone here has similar symptoms I would love to hear about your experience.
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Old 03-14-2015, 08:42 PM #2
Lara Lara is offline
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Lara Lara is offline
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Hello and welcome to the NeuroTalk Support Groups.

We have some very knowledgeable members who post on the

Epilepsy Forum

Perhaps if you repost over there you will get some ideas.

All the best for your Neuro appointment on Tuesday.
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Old 03-14-2015, 11:46 PM #3
PoppyRoad PoppyRoad is offline
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Thank you, Lara.
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Old 03-15-2015, 09:59 AM #4
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Welcome PoppyRoad.
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"It is what it is."
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Old 03-15-2015, 10:04 AM #5
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Welcome Poppy,

In another time, in another culture this may have been viewed as a Divine gift allowing you to experience the mystery and beauty of the world. I am glad your CT was normal. If they don't figure this out after your work up and can't get the symptoms controlled take it for a symbol of specialness...

Hoping you find relief soon,
Littlepaw
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Old 03-15-2015, 04:53 PM #6
PoppyRoad PoppyRoad is offline
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Thank you Littlepaw and Kitt.

Littlepaw, my wonderful psychiatrist said the same. If I had others who were like me, it would make a difference. The worst part of this is feeling so very isolated.
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Old 03-15-2015, 07:02 PM #7
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You have landed in a soft place. Even if there isn't one single person on the forum with the same symptoms we all understand suffering, uncertainty, medical mysteries and the feeling of isolation. Come here when you need to vent or need compassion or commiseration. You are no longer alone.

Take care,
Littlepaw
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Old 03-15-2015, 07:26 PM #8
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Hi PoppyRoad,
I echo what Littlepaw says, a lot of us here feel isolated IRL, but on this Forum we are a Community. You will find the Forums informative and the members supportive, meander around and Post anywhere, you will be surprised how inclusive this wonderful place is.
Don't ever feel isolated again.

Dave.
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Old 03-16-2015, 01:09 PM #9
PoppyRoad PoppyRoad is offline
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Littlepaw and EnglishDave, your posts mean so much to me...I am deeply grateful. Thank you.
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Old 03-17-2015, 01:03 AM #10
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Wink Nice to meet you!!

PoppyRoad,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place.

Lara gave you a forum to check into, there are some fellow friends to assist with you, including myself, with questions. Here are some suggestions for epilepsy:

My advice to you is to start seeing an Epileptologist at an Epilepsy center you can find these Drs. at large hospitals or university hospitals these Drs. specialize in epilepsy. Start keeping track of each time a possible sz. happens write down what time it happens on a calendar along with a description of the sz. this will help the Dr. see if you have a pattern in your sz.Try taking vitamin B12 1000 mcg. once a day for adults. Cut back on the carbs and starch foods and stay away from anything with nutra sweet because the nutra sweet causing more electrical activity in a persons brain and can trigger sz. sometimes. Something else you should do is if you go to the theater for a movie, shut your eyes and turn your head when they have flashing light coming out. This can cause a seizure to start.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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"Life without God is like an unsharpened pencil -- it has no point.
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