[silverbaglady]

Take your choice I have Fibro, Lupus, RA, I might still have Lyme Disease, I do have Peripheral Neuropathy, I do have something wrong with my immune sytstem. No one seems to have any interest in knowing what the problem is, except me. Since tests don't show much, Drs figure I am probably crazy, that is probably true after 20 years of this. I have picked Fibro, because they can treat me for that, sort of, it also describes a lot of what is going on, and after the clinical diagnosis of Lyme Disease, it fits into the picture. Just lately, a doctor bothered to tell me what that burning sensation in my feet and legs is, and that is because I called him on it, as I met someone else with a diagnosis that had the same problem. Since he can barely walk I would really like to know is that probably what I have to look forward to if I live long enough. Also since I have a bad back and neck and was attributing all my symptoms to that, can it affect your bowel and bladder, or is the irritable bowel and bladder resposible for not having appropriate feelings, i.e. the need to go and when. Am I flying off. because I had no sensation of needing to because of the neuropathy, or my back or could it be either? You all live this daily and, by now you have a good idea of what can happen. I would like a worst case and a best case for Neuropathy.

[Lara]

Hello Silverbaglady,
Welcome to the NeuroTalk Support Groups.

You might like to re post over on the
Peripheral Neuropathy Forum

The members there might have some ideas about whether a lot of your symptoms are associated with the neuropathy that you have.

As for your other conditions, you may like to check out the
Forum Index for specific conditions e.g. Autoimmune Disorders, Spinal, Lyme etc.

take care and if you have any difficulties navigating the site, just post back and someone will help.

[Kitt]

Welcome silverbaglady.

[Darlene]

silverbaglady,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[Diandra]

Originally Posted by silverbaglady

Take your choice I have Fibro, Lupus, RA, I might still have Lyme Disease, I do have Peripheral Neuropathy, I do have something wrong with my immune sytstem. No one seems to have any interest in knowing what the problem is, except me. Since tests don't show much, Drs figure I am probably crazy, that is probably true after 20 years of this. I have picked Fibro, because they can treat me for that, sort of, it also describes a lot of what is going on, and after the clinical diagnosis of Lyme Disease, it fits into the picture. Just lately, a doctor bothered to tell me what that burning sensation in my feet and legs is, and that is because I called him on it, as I met someone else with a diagnosis that had the same problem. Since he can barely walk I would really like to know is that probably what I have to look forward to if I live long enough. Also since I have a bad back and neck and was attributing all my symptoms to that, can it affect your bowel and bladder, or is the irritable bowel and bladder resposible for not having appropriate feelings, i.e. the need to go and when. Am I flying off. because I had no sensation of needing to because of the neuropathy, or my back or could it be either? You all live this daily and, by now you have a good idea of what can happen. I would like a worst case and a best case for Neuropathy.

Hi and welcome to the NT forums,
we're you ever treated for Lyme Disease, and if you don't mind me asking, with what and for how long.? LD can be much more serious than most people or doctors realize. If you got it first, before all the dx's of FMS, Lupus, RA and PN...LD may still be causing alot of your symptoms. I was told my LD was gone but then had FMS and learned later I still had Lyme.

I have chronic central nervous system Lyme and was first dx'ed in 1991. Have had many yrs of ups and downs and have tried a ton of treatments from allopathic docs to every type of alternative method around. Would be happy to share with you.

Diandra