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Old 04-15-2015, 05:36 PM #11
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Hi there Sonia and Panicked,
Have either of you had MRIs or other tests which show a cause for your dx. I have a knot of arteries tied round my Trigeminal Nerve - left side - causing chronic paresthesia, neurological facial pain and TN. A proper dx of the root cause is essential for the treatment of all of these conditions.
Panicked, I would suggest you also Post your whole history on our Dental Forum as this was the trigger. You may find answers there.
Sonia, I do not know about Botox as a treatment, I would feel the same as you as to ending up looking 'plastic'.
I would point both of you in the direction of nasal Lidocaine spray which is known to give instant relief from an attack.
To both of you, suffering this sort of excruciating facial pain is miserable, debilitating and seemingly endless. Know that there are people here who understand your pain and can offer support.

Dave.
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Old 04-15-2015, 05:55 PM #12
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Quote:
Originally Posted by Olraalil View Post
After multiple doctor visits and tests to rule things out, I have been diagnosed with 'Atypical Facial Pain' and told there is nothing I can do but learn to control the pain.
I hurt almost all the time, can't sleep.....3 months of constant pain.
I'm on gabapentin, which makes me see double and feel dizzy and off-balance, but doesn't really take the pain away. It kind of makes my head feel numb. I also take .25 mg xanax 3 times a day; it seems to dull the pain.
I've used up my sick leave, but it's hard to work with the pain/drugs.

Also going to chiropractor and acupuncturist, but so far nothing has helped.

Any words of wisdom or suggestions?
I've gone to ativan rather than the gabapentin. Not as much of a hangover and easier to control. Prednisone in small doses to help with the symptoms that go beyond the need for pain med. good luck
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Old 04-23-2015, 02:41 PM #13
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Tricyclic anti-depressants such as Nortriptyline can be very helpful with Atypical type pain
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Old 04-26-2015, 08:22 AM #14
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Default Botox For Nerve Pain

BOTOX WORKS! I get 100 units of Botox and markaine every 3 months, and it stops the burning and dull pain. I get around 20 shots on the side of face of nerve damage in the neck, face, jaw and scalp.

Quote:
Originally Posted by Olraalil View Post
After multiple doctor visits and tests to rule things out, I have been diagnosed with 'Atypical Facial Pain' and told there is nothing I can do but learn to control the pain.
I hurt almost all the time, can't sleep.....3 months of constant pain.
I'm on gabapentin, which makes me see double and feel dizzy and off-balance, but doesn't really take the pain away. It kind of makes my head feel numb. I also take .25 mg xanax 3 times a day; it seems to dull the pain.
I've used up my sick leave, but it's hard to work with the pain/drugs.

Also going to chiropractor and acupuncturist, but so far nothing has helped.

Any words of wisdom or suggestions?
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Old 04-26-2015, 10:49 AM #15
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Welcome kdockx23.
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Old 04-26-2015, 02:02 PM #16
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Quote:
Originally Posted by kdockx23 View Post
BOTOX WORKS! I get 100 units of Botox and markaine every 3 months, and it stops the burning and dull pain. I get around 20 shots on the side of face of nerve damage in the neck, face, jaw and scalp.
Hi kdockx23,

Botox has only been shown to 'work' on Idiopathic TN in small clinical trials and for a short time before needing repeat treatment. Continued use increases the risk of facial weakness from this nerve toxin.

While I am pleased you get some relief, I would like to hear your history, how damage occurred and what other treatments you tried before opting for this radical course.

Dave.
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The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.

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Old 12-15-2015, 06:13 PM #17
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Quote:
Originally Posted by Olraalil View Post
The pain is inside my ear, in front of my ear, in back of my ear, in the point of my jaw, down my neck.......etc.
Isn't that Geniculate neuralgia ? Sounds same place as my pain
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