Hi everyone! I'm 30 and have not been diagnosed with PN, but I'm starting to have symptoms of it (non diabetic variety). My dad is 60 and has had significant idiopathic PN for 20 years. He recently started having major problems with foot wounds and is having an amputation of his small toe this week. dr calls his PN "significant"--basically no sensation below the knee. He's on all the glorious pain medicines--very clearly affecting his mental state and alertness after so many years .

I'm here because I'm concerned for Dad and also worried that I'm young and we have not had any prior worry that this is genetic. genetic PN is rare and Dad is one of 4 kids (only one to have this disease). The fact that I'm now having more regular tingling/shooting pains in my hands and feet is alarming. I don't want to freak out anyone in my family and attention is focused on helping Dad recover from his amputation. I'm on a B12 supplement and I see lots of great tips on here for supplements to try.

I'm wondering what you would do in my shoes. I really do not want to go through a battery of tests only to confirm what I'm already worried about, but I don't want to ignore the problems and get worse. I have two kids under age five, happily married, and great job. But if my health deteriorates, I worry I won't be able to take care of my family like I want too. Thanks for your thoughts!

Welcome EternalOptimist.

Hello and welcome to the NeuroTalk support groups.

Here is the link to the
Peripheral Neuropathy Forum

and also

PN Tips, Resources, Supplements & Other Treatments SubForum

There is a wealth of information on those forums and I'm sure you'll find support there.

take care.

Thank you!!!

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene