[Auntie Audrey]

Hello to everyone! My experience is possibly a little bit unusual because I didn’t develop symptoms of neuropathy until later in life after I was already retired. My most serious problem now is an inability to walk unaided for more than even a few minutes at a time. I thought at least some of my retirement would be spent traveling, but instead I’ve been spending much of my free time on the internet searching for nerve damage treatments.

Over the past few months I’ve been taking a regimen of various supplements, adding and subtracting and changing doses when it seemed appropriate, and I think my symptoms have pretty much stabilized. I’ve been encouraged that some of the spasticity in my legs seems to have actually improved a little.

I will likely be posting again in the Vitamins & Supplements forum to share some ideas with others. Thanks for taking the time to read this!

[Darlene]

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Click on the following there you will find some caring friends to help you with questions.

http://neurotalk.psychcentral.com/forum20.html

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[caroline2]

Audrey, do visit the vitamins/supps area as I post a lot over there....good to meet you and I'm pretty new here myself. I'm dealing with Femoral Nerve Damage from a hip replacement.

[Kitt]

Welcome Auntie Audrey.

[Auntie Audrey]

Hi Darlene, Caroline and Kitt, it is so nice to meet all of you and thanks for your warm welcome!

Caroline, after many tests and MRIs, my doctor says my neurological problems are being caused by a non-MS demyelinating condition of my spine. My B12 levels tested very low, so I’m hoping that what I may have is related to a B12 deficiency that will eventually respond to supplementation. My D levels were also marginally low, which my doctor says is not that abnormal for people living in a cold climate as we do (Green Bay Packer country), but nevertheless I am supplementing with D3 too in the hopes that it may begin to improve my leg mobility.

[mrsD]

If you have a demyelinating situation, that is serious, and I'd suggest you use activated B12, called methylcobalamin. People can have a mutation commonly which will not convert cyanocobalamin in most injections and you will continue to worsen in spite of them.

5mg orally on an empty stomach once a day...every day should provide constant methylcobalamin to help you heal. If you have had this a LONG time, there may not be much healing. But you need it ASAP to get that ball rolling quickly now.

Costco and Walgreens carry this form of B12 now, and of course, online at Amazon and iherb.com and Puritan's. Pennies a day, it costs... no reason not to have the best.

[Auntie Audrey]

Thanks so much for your quick response, mrsD. I began taking oral methylcobalamin as soon as I found out I was B12 deficient, which was about three months ago. Beginning with a dose of 2000 mcg daily, I gradually increased it each week until I reached 5000 mcg daily.

Currently I take 3000 mcg of methylcobalamin in the a.m. one hour before a meal, and another 2000 mcg in the p.m. about three hours before a meal. The brand I am using is Earth Sweet Chewables by Bluebonnet which I purchase through iherb. I realize that it may take as long as a year or two for any noticeable results, but I am in this for the long haul and I am a hopeless optimist!