[KateKline]

Oh golly......am I glad I found this board! My name is Kate and I have a bladder disease called interstitial cystitis (IC). 2 months after I was told I have IC, I was in a car accident. I soon after that began having a feeling like someone is shaking my insides along with upper ab pressure.....severe pressure at times. Soon I began having discomfort in my groin, numbness in my feet, and tingling in my hands. I also have trouble sleeping a jolt several times before falling asleep. After seeing a bazillion Drs I finally was told by my neurologist that I have small fiber neuropathy. I have trouble with a weak left leg. I am miserable....my left hand now tremors constantly and I have burning like in my buttocks. I am constantly uncomfortable. I can barely eat due to the ab pressure. My bladder is calm and I don't have pelvic pain. My neuro doc is worthless as she just gave me Cymbalta and gabapentin and said come back in November. I am trying to get into Mayo or NIH.......I'm wondering if anyone has anything like this?

[Lara]

Hello Kate,
Welcome to the NeuroTalk Support Groups~

I see you've found the PN forum. You're sure to find support and information from the members there.

take care.

[DejaVu]

Hi Kate,
Welcome!

Kate, you are going through a lot and it all sounds like it may be unsettling.
I'd want more answers, too.

As for the IC, I have had some extremely painful episodes of IC. I have been able to keep them at bay by following dietary guidelines, fortunately.
I had learned about the diet at the Interstitial Cystitis Association www.ichelp.org

I will catch up with you on the PN forum.
There are also some fun threads where we share music, jokes, wildlife and more!

I hope to see you around the community!

To Our Healing,
DejaVu

[KateKline]

Thanks, Lara and DejaVu!
I am a huge hot mess. Forgot to mention the ringing in my head. It intensifies as day goes on. I am so much worse at night than during the day. Thank goodness I have found this board!!!!! Xoxo

[Darlene]

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene