New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 06-20-2007, 01:09 PM #1
daisy1959 daisy1959 is offline
New Member
 
Join Date: Jun 2007
Location: Moncks Corner SC
Posts: 1
15 yr Member
daisy1959 daisy1959 is offline
New Member
 
Join Date: Jun 2007
Location: Moncks Corner SC
Posts: 1
15 yr Member
Default Chiari malformation and attention deficit disorder

Both my son and I have had cervical decompression surgery for Chiari I malformations and syringomyelia. Shortly after his surgery at age 8, my son developed symptoms of ADD. There is a strong history on his dad's side (grandfather, father, brother and 2 sisters) and I have always just assumed that it was in his genes. Today I read a reference to ADD and cervical abnormalities. It has always bothered me a little that his school performance fell dramatically after the surgery, but since the neurosurgery didn't involve his cerebral cortex and there was no anoxia (lack of oxygen) I couldn't see a cause. His procedure involved an incision in the back of his neck, an enlargement of the foramen magnum (opening in the skull) and duraplasty (adding cadaver spinal cord covering to upper cord. He also had a laminectomy (removal of the back of the verterbrae) at the first cervical level. Today I read a couple of chiropractic case reports of boys with abnormal cervical spines and ADD and Tourette's syndrome. Does anyone have any experience with this?
daisy1959 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (11-27-2009)

advertisement
Old 06-20-2007, 02:46 PM #2
Alffe's Avatar
Alffe Alffe is offline
Young Senior Elder Member
 
Join Date: Aug 2006
Posts: 11,298
15 yr Member
Alffe Alffe is offline
Young Senior Elder Member
Alffe's Avatar
 
Join Date: Aug 2006
Posts: 11,298
15 yr Member
Default

Welcome to Neuro Talk Daisy. Below is the link to the ADD forum where you will find lots of support.


http://neurotalk.psychcentral.com/forumdisplay.php?f=39
__________________

.
Alffe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (11-27-2009)
Old 06-20-2007, 02:48 PM #3
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

Hi Daisy, it's good to meet you.
There is an Arnold Chiari Malformation & Syringomyelia Forum here as well.

I've read some reports regarding cervical spine abnormalities and Tourette's Syndrome, but they refer to the Tics causing the problems, rather than the other way around. Tourette's Syndrome is not caused by cervical spine abnormalities. Does your son have Tics? I'm very wary of chiropractic treatments because I have some abnormalities in my spine but I do know of an adult who has Tourette's Syndrome who has found great relief with chiropractic treatments though. I've also never come across the theory that the ADHD might be caused by cervical spine problems either.

There are quite a number of articles in PubMed regarding cervical myelopathy secondary to Tourette's Syndrome.

PubMed Article
Brain Dev. 2007 Mar;29(2):61-3. Epub 2006 Dec 22
Tourette’s syndrome with cervical disc herniation
Jainn-Jim Lin, Huei-Shyong Wang, Mun-Ching Wong, Chieh-Tsai Wu and Kuang-Lin Lin

Quote:
Movement disorders, such as tics, may contribute to the development of cervical myelopathy owing to the effects of involuntary movements on the neck. However, the association of cervical myelopathy with motor tics of the head and neck is rare. We report here a case of a violent, repetitive neck extension due to Tourette's syndrome that developed cervical myelopathy caused by cervical disc herniation.

PubMed Article

Mov Disord. 1996 Sep;11(5):563-6.
Severe motor tics causing cervical myelopathy in Tourette's syndrome.
Krauss JK, Jankovic J.

Quote:
This report draws attention to the possibility that some tics can produce disabling compressive myelopathy.
I can't help you with the Chiari specificially but I do know there are a few people who post on this site who are very knowledgeable. I'm sure they'll be along soon. Whether tics or ADHD symptoms are common in people who have Chiari I malformations and syringomyelia is something I do not know, but I am aware that there seems to be a connection in some people between Chiari and behaviours associated with the Autism Spectrum. I'm sure others will be able to give more information about that.

All the best to you and your son!
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (11-27-2009)
Old 06-20-2007, 03:22 PM #4
Doody's Avatar
Doody Doody is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
15 yr Member
Doody Doody is offline
Grand Magnate
Doody's Avatar
 
Join Date: Aug 2006
Location: Iowa
Posts: 4,582
15 yr Member
Default

(((Daisy))) It's nice to meet you even though under these circumstances. I'm sorry about what you've been through and are going through.

You may also want to check out the spinal disorders forum to see if anyone there has similar situation.

And welcome. You'll meet great people here.

Nancy
__________________

.


.


.


.


.



.

Bruna - rescued from a Missouri puppy mill
Doody is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (11-27-2009)
Old 06-20-2007, 03:57 PM #5
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
Default

ADD is always a symptom. Of course, it can exist with Chiari, autism, CP, hycrocephalus, etc., and anytime it's dx'ed by itself, IMHO, a CT or MRI is in order. EEG and allergy testing isn't a bad idea, either.



Just my take,
LIZARD
LIZARD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (11-27-2009)
Old 06-20-2007, 09:29 PM #6
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
watsonsh watsonsh is offline
Grand Magnate
 
Join Date: Dec 2006
Posts: 4,642
15 yr Member
Default

Hi Daisy,

Was just passing through and wanted to welcome you to the forum.
watsonsh is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
(Broken Wings) (11-27-2009)
Old 11-27-2009, 06:21 AM #7
Lauren0515 Lauren0515 is offline
New Member
 
Join Date: Nov 2009
Posts: 1
10 yr Member
Lauren0515 Lauren0515 is offline
New Member
 
Join Date: Nov 2009
Posts: 1
10 yr Member
Default Chiari Malformation and ADD

I had almost the exact same Chiari surgery when I was 12. I had previously been doing fine in school. After my surgery though I was diagnosed with ADHD because I could not concentrate and my grades dropped pretty dramatically. I always was curious if it had occurred because of the surgery, but I don't think we will ever know for sure.
Just wanted to let you know you're not the only one who had experience with it! I hope he is doing well & take care.
Lauren0515 is offline   Reply With QuoteReply With Quote
Old 11-27-2009, 01:15 PM #8
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

Welcome to NeuroTalk Lauren!
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
Old 06-14-2013, 06:04 PM #9
GrammieX4 GrammieX4 is offline
New Member
 
Join Date: Jun 2013
Posts: 1
10 yr Member
GrammieX4 GrammieX4 is offline
New Member
 
Join Date: Jun 2013
Posts: 1
10 yr Member
Frown GrammieX4

Quote:
Originally Posted by daisy1959 View Post
Both my son and I have had cervical decompression surgery for Chiari I malformations and syringomyelia. Shortly after his surgery at age 8, my son developed symptoms of ADD. There is a strong history on his dad's side (grandfather, father, brother and 2 sisters) and I have always just assumed that it was in his genes. Today I read a reference to ADD and cervical abnormalities. It has always bothered me a little that his school performance fell dramatically after the surgery, but since the neurosurgery didn't involve his cerebral cortex and there was no anoxia (lack of oxygen) I couldn't see a cause. His procedure involved an incision in the back of his neck, an enlargement of the foramen magnum (opening in the skull) and duraplasty (adding cadaver spinal cord covering to upper cord. He also had a laminectomy (removal of the back of the verterbrae) at the first cervical level. Today I read a couple of chiropractic case reports of boys with abnormal cervical spines and ADD and Tourette's syndrome. Does anyone have any experience with this?
I am not sure that I am replying in the right area, but here goes. My 9yr. old grandaughter had decompression surgery last year for Chiari Malformation ( she lives with me ) she also has syringomyelia ( a cervical syrinx and a thorasic syrinx) which has caused severe scoliosis and the need to wear a Boston Brace 16 hrs aday. She also has ADHD an takes meds for this. In answer to your question my grandaughter also seemed to experience ( still having issues ) academic problems ( staying on task, spacing, not understanding how to do basics in math and writing skills, etc. after the surgery. Her teachers also saw a difference and mentioned it to me, plus they were concerned with the obvious change in her skills, etc. to write a letter to her NS that did her surgery, so that when we went back for a follow up check I would have this letter plus my obvious concern to voice to him. Sadly the NS did not really think it was a problem ( her teachers and I still think that it is) so I am always looking for a correlation with academic learning and Chiari. Until the medical community acknowledges Chiari Malformation and Syringomyelia as serious disabilities, we are left to struggle on our own with all of this and all of its many side effects, without any medical support or acknowledgment. By the way her father also had ADHD as a child ( my son ) and her older sister also has ADHD and is on meds as well. I hope in some small way this helps.....
GrammieX4 is offline   Reply With QuoteReply With Quote
Old 06-14-2013, 09:59 PM #10
Hudsmom Hudsmom is offline
Junior Member
 
Join Date: May 2013
Location: GA
Posts: 74
10 yr Member
Hudsmom Hudsmom is offline
Junior Member
 
Join Date: May 2013
Location: GA
Posts: 74
10 yr Member
Default

I'm not sure about a possible connection but I'm certainly starting to figure out some of the school resources. If your child is struggling you can request an IDP plan and by the way the school must pay for any accomadations or a 504 plan (no $). Our school system takes approx 6 months to get this started but it has helped both of my children. 1is ADHD the other has ADHD, ts, anexity attacks. Hang in there.
Hudsmom is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
arnold chiari malformation shorty-5 New Member Introductions 3 04-26-2019 05:33 PM
Post-op Arnold Chiari Malformation surgery JoAnne Hobbs Arnold Chiari Malformation & Syringomyelia 13 03-06-2014 11:57 PM
New to RSD and Chiari I Malformation radmom32 New Member Introductions 4 01-03-2010 11:57 AM
Recently diagnosed with bipolar disorder and borderline personality disorder rlw070893 New Member Introductions 4 03-31-2007 12:47 AM


All times are GMT -5. The time now is 08:17 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.