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Old 06-27-2015, 05:15 PM #1
Lovelife01 Lovelife01 is offline
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Confused New Member, MG & POTS newbie

Hi, been battling Myasthenia Gravis for 8 years and now diagnosed with POTS, can life get any harder! Just needed some positive thoughts from anyone out there! Has been hard staying positive lately and decided to join.
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Old 06-27-2015, 05:32 PM #2
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Hello Lovelife,
Welcome to the NeuroTalk Support Groups.

Here is the link to the
Myasthenia Gravis Forum

I'm sure you'll find support and information from the members who post there.

The best way to find other threads or posts regarding POTS is to use the forum search feature that I'll post below. You could search using terms POTS or postural orthostatic tachycardia syndrome or even dysautonomia.

http://neurotalk.psychcentral.com/search.php

take care there.
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Old 06-27-2015, 05:37 PM #3
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Welcome Lovelife01.
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Old 06-27-2015, 06:46 PM #4
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Hi LoveLife,

I don't have MG, but was tested for it when I was struck with sudden double vision when driving. Tests came back negative and an MRI shows I have a lesion causing the vision problems, so it is permanent and unstable. It was a stressful time waiting for the blood tests to come back.

So why have I Posted? To let you know that this is the most supportive and caring Community you could have found. I know you will be afforded a warm welcome on the MG Forum that Lara has provided the Link to, and I urge you to explore the other Forums, too, perhaps the Sanctuary or Depression Forums could offer you additional help.

Dave.
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Old 06-27-2015, 11:48 PM #5
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Wink Nice to meet you!!

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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Old 07-03-2015, 05:11 PM #6
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Quote:
Originally Posted by Lovelife01 View Post
Hi, been battling Myasthenia Gravis for 8 years and now diagnosed with POTS, can life get any harder! Just needed some positive thoughts from anyone out there! Has been hard staying positive lately and decided to join.
godbless you .. iam waiting on my nero to give me his answer... think its going to m.g. and fibro . i have low tch @ rt eye droppy was in wicked pain 2 years they gave me lyrica wow it helped big time
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Old 07-03-2015, 07:27 PM #7
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Hi speedwaygriff,
Welcome to NeuroTalk!
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Old 07-03-2015, 08:16 PM #8
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Welcome speedwaygriff.
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Old 07-05-2015, 05:02 PM #9
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thank you very much !
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