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Old 07-07-2015, 08:45 AM #1
bangels bangels is offline
New Member
 
Join Date: Jul 2015
Location: Tennessee
Posts: 5
8 yr Member
bangels bangels is offline
New Member
 
Join Date: Jul 2015
Location: Tennessee
Posts: 5
8 yr Member
Thumbs down new..searching for answers and support

Hi.....introduce myself it says.....38 yr old female presently stressed about my future. My brain thinks I'm fine...but I'm not. Hard to swallow.

-2-3 years ago I had 2 spirts of neuropathy. One for a week...one for 2 months. This time it's stuck around.

1.5 years w undiagnosed neuropathy. 16 doctors.. From a chiropractic to ms specialist.
Tests from mris from my head to butt, 6 xrays, blood drawn 4x, 2 ultra sounds on my legs 1 of my girl parts, 2 emgs...one normal one saying automatic and sensory neuropathy. 1 skin sample one 2 samples taken showed nothing. (Thank goodness for my Obama Care insurance!)
-every doctor said I can't help u u need to go to pain management.

My symptoms just showed up one morning... Pins and needles primarily in my right but still in both...dead spot on bottom right ankle. Since then they have changed to:no...both of my legs up to my hips, discoloration ( blochy Red)dead spots are growing on right and left, spots in my vision, blurred vision while reading off and on, troubles swallowing my meds, palpataions, sweats, joint pain, and I do believe the burning is spreading.

Medications- started w prozac, gsbapentin and 800 ibu. Since then I've been on: lyrica, Maxed out the amount of gsbapentin, 2 different pain lotions,percocet, and 2 different sample for diabetic nervd pain, xanx. Presently: in pain management w a doctor who cares. Cymbolta, amnatriptalin, xanx,nucrnta,and er oxcycotin.

.. After all this time I'm referred to a muscle nerve neurologist by my pain doctor. A physical is all he did...that translated to small fibet neuropathy and him being very aggravated w my old neurologist. Now I have to wait(again) for all my records fro. One neurologist to the new one so he can see what tezts and results have happened already. I'm totally expecting to do multiple test in September.

Work...Ive been a server for years...not any longer. My boss said my booboo makes me unreliable. I have a hard time standing or walking for longer the a cple hours.. The same w sitting. . So now I roll silver and make things and sell them at the flea market. Have applied for disability... And now have a lawyer.

Lastly in here...on this site...for support and questions. Depression can get so bad its crazy... I try to think of s future but cell like I don't know what is going to happen from here on. Am I gonna be blind? In a wheel chair? I'm just lost. Getting a diagnosis dint really help anything. I want a test saying you have "whatever" and if we try and fix that then we can fix ur neuropathy.

Yup....that's my introduction.
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