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Kitt 08-07-2015 08:42 AM

Quote:

Originally Posted by glenntaj (Post 1160747)
--has no one suggested the possibility that the smoldering myeloma may have something to do with the facial pain?

Myeloma, and the other blood conditions associated with M-proteins or monoclonal antibodies, are known for producing neuropathy due to cross reactivity with nerve epitopes:

http://neuromuscular.wustl.edu/antibody/mprotein.htm

Almost done with the book that Tom Brokaw wrote about his dealing with MM.

Referring to the site you provided, the M spike is what they call it and they want to get that under control and back to zero. Two more rounds of chemotherapy. I have the last chapter of the book to read and see how it turns out.

NoseHurts 08-07-2015 09:28 PM

[QUOTE=glenntaj;1160747]--has no one suggested the possibility that the smoldering myeloma may have something to do with the facial pain?

Myeloma, and the other blood conditions associated with M-proteins or monoclonal antibodies, are known for producing neuropathy due to cross reactivity with nerve epitopes:



No one has connected the smoldering myeloma to the facial pain. They have said the neuropathy I get occasionally in my feet is from the smoldering myeloma. I will check the link you have sent plus ask the doctor. You would think, since he knows I have the MM that he would say something if he new of any link to the facial pain.

Thank you for writing.


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