Thank you, I am alone, but just spoke with my husband on the phone. I have literally been pacing my apartment all day worrying myself into a state. I also started lisinopril several days ago and wondering of this medication is making me freak out. I can feel nerves jumping all over my body. Looking back I can now see that this has been 5 years of missed diagnoses and surgeries, and don't know why this illness is not more announced and commonly known, because this is devastating.

At the same time, I'm worried this will shut down my system as it did my mother's at 46 yoa. I know I'm about to lose a great career that I have worked hard at and had many people help me to get here, and who recommended me, and I'm sorry to let them down . But know I have to step out off the hamster wheel now, I need to make drastic changes, and I am ready to chuck it all to focus on trying to live. .
You are right my anxiety is at an extreme high. Thank you for the number, I may need it tonight.

God bless.

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Hi again Rebecca, what is the name of the illness that you mean?

Lisinopril - there are people on the forums who have had extremely bad reactions to Lisinopril. You could search it in the forum search feature
http://neurotalk.psychcentral.com/search.php

Can you contact your doctor with your concerns about the Lisinopril?

May I ask if you have been regaining mobility slowly but surely since the episode in July, but now you have terrible nerve pain???

Hi Rebecca

Welcome to NeuroTalk :).

As you can see from the other posts, it is a knowledgeable and supportive community.

One thing that you wrote struck me:

"and drain my lymph nodes"

The next time you see the health professional who did that it might be an idea if you asked him/her why that was done. The answer (if you don't understand at first, keep on asking until you do) could help you.

All the best.

Thanks, she thinks I have belly swell from a pelvic surgery 8 months ago. I am quite thin actually, except for the swelling in my abdomen. Because I have nerve weakness, she thinks getting rid of the swelling will help me build my "core" to keep me from falling. It was funny, I thought I just hda grumbling stomache, but even when she was working on my upper chest I felt bubbles. Don't know if you understand that, but I did feel less tension in my abdomen. I have gone ten years since my son was murdered, and feel that I've been in a constant fight or flight responce. My body is hunched and folding in on itself, and I'm sure Im on Cortisol overload.
I know I made her sound as if she was freaking me out(which she was) but I know she is not going to touch my hand until I have a diagnosis. She has worked with chemo and Cancer patients, but for some reason, I get the feeling she doesn't know what to do to help me

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5 times now replying to you, just to have my hand make a wrong move and lost it.

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I am a ndeed having a bad reaction to lisinopril, my husband told me to cut them in half tomorrow and see how that works, but I don't want to take them at all based on what I've Read. Scary stuff if I start swelling no way am I making it to ER on time.

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No, went to neuro recovery at UW that was the most useless thing I have done weird part is ER doc told me I have a abnormal MRI. Insisted I go to UW 4 hours away, scheduled the appointment, but looking at my release papers, he does not mention it, and calls my paralisis "weakness* very Vanilla discharge papers for a guy who told me my brain scan was abnormal. Went to UW as requested, they say my brain scan is normal. What the heck!!!.

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Hi, I will be contacting my physician on Monday ( put in a call on Friday, but no response, it is making me crazy in pain and Anxiety's through the roof!

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Hi Rebecca

I hope that the meeting with your physician goes well.

My apologies if I have got this wrong but I have the impression that a health professional has removed fluid from your abdomen in the past. If I am right, this fluid is sometimes called ascites and it can accumulate in the abdomen (the peritoneal cavity) for many reasons.

I suggest that you ask your physician about this. One option (I am not meaning to second-guess your clinical care team) is to check out your liver function - this is something that you could discuss with your physician.

All the best.

Hi again Rebecca,
I hope that when you contact your doctor on Monday that you are able to get an urgent appointment. I'm sorry you have to wait so long is all.

If you think that your nerve pain has been caused or made worse by drinking, I would suggest that you check out this thread that I'll post below. There are many very courageous people who can tell you that with time you can recover a lot. There is also a lot of invaluable information throughout the thread regarding supplements and treatments that may be of help to you right now.
http://neurotalk.psychcentral.com/thread104096.html

Also there is the PN forum which I see you found and also the
PN Tips, Resources, Supplements and Other Treatments sub-forum

take care there.