[Starburst]

Hello,

I was recommended this forum, so thought I'd join and say hello.

I'm from the UK, not far from London. I'm 27 years old and was diagnosed with Rheumatoid Arthritis in 2009 and Gastroparesis in 2014. Earlier this year, I started experiencing breathlessness. After a lot of toing and froing, it was found that my heart is beating abnormally due to electrical signals. I have just been told that I have autonomic neuropathy. I wasn't expecting this diagnosis, as I was initially told that the Gastoparesis was idiopathic. I have googled but feel a bit confused about what this means for me. I'm under the care of gastroenterology and rheumatology. Gastro has been treating my symptoms but ultimately, thinks the symptoms will ease if/when we get the autoimmune disease under control. This has proved tricky as I am already on a fair whack of immunosuppressant drugs and I keep getting infections, so there is a risk.

I'd love to hear from other people who live with autonomic neuropathy. I use a few Gastroparesis forums and there are plenty of people who have this condition but they have POTS too, which I definitely do not have.

Thanks for reading.