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09-30-2015, 01:35 AM | #1 | ||
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I have searched many forums for neuropathy caused by trauma. In May I had a terrible fall. I broke both shin bones (tibia & fibula). My fibula (the large bone) was sticking out of my leg. After calling 911 & being taken to a trauma equipped hospital, I had surgery. My next hurdle was to find out if it was a compartmental
fracture & to see wether or not they would amputate my leg. I was taken to a rehab facility for the next 3 weeks. While there I always had cold toes, then stiffness & numbness began. The Dr. Put me on 300mg gabapentum, which btw I had no problem with. After I was released I started seeing a neurologists. He did testing (eeg)? I found out I had idiopathic neuropathy. Being that I had nothing but time on my hands to research this drug. At the time I was on oxycodone, 10mg, 10 mg tramadol. I did nothing but sleep. Sometimes 16-18 hrs a day. I was lethargic so much to the point I started weaning myself of the pain meds but stayed on the gabapentum. Now he told me to take 1200 3 times a day. I went back to sleeping & lethargy. I felt terrible, like my head wasn't normal. Having to learn how to walk, I couldn't get anywhere without either a wheelchair or use a walker. The pain in my toes are horrible! I stated rubbling arnica cream & comfrey ointment on my foot. I am desperate for relief. I even purchased nerve capsules that were basically a bunch of B vitamins COQ-10 & R-alpha lipoic acid & other stuff, that cost me 43.00 a month. Like I said I am desperate for anything to relieve this pain. I contacted the Dr. & he is now weaning me off the gabapentum. So I guess is who else has had trauma due to an accident. |
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09-30-2015, 01:57 AM | #2 | |||
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Legendary
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Hello Karen,
Welcome to the NeuroTalk Support Groups. I'm very sorry to read about your accident. It sounds really bad. I see you have already posted in the middle of a thread in the PN forum and it may have been overlooked somewhat so it may be better to start your own thread there so that others won't miss your post and questions. Peripheral Neuropathy Forum There is also the PN Tips, Resources, Supplements & Other Treatments SubForum That contains information about supplements, medications and other treatments that may be helpful to read. I'm sure the members here will offer you information and support to aid your recovery and to help you deal with the pain that you're experiencing. take care. |
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10-01-2015, 01:45 AM | #3 | |||
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Legendary
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Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. Darlene
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10-01-2015, 04:07 PM | #4 | |||
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Hello Karen,
I am so sorry for all you've gone through. Life just changes on a dime! You have landed in a soft place though where we have a great group of supportive and caring people. Post traumatic neuropathy is a difficult animal to find information on. I have read that it tends to share some features with Complex regional Pain Syndrome but it is less complicated. That said some Treatments for CRPS may be of help to you since they are geared towards neuropathic pain. If you are hitting a wall with neurology, a good Physical Medicine doc or Pain Management specialist may be of help. I also always encourage those with nerve injuries to consider a visit to a peripheral nerve specialist (usually plastics and reconstructive surgeons) to find out if anything can be done to address scar tissue, entrapment or laceration. A great resource for that is here http://nerve.wustl.edu Keep at it on trying different meds. I myself felt like a depressed zombie on gabapentin but do just fine on nortriptyline for nerve pain. There are a lot of options. You might also like some of the compounded topical pain prescriptions to put on those toes. Come see us and let us know how you're doing. I hope you find relief soon!
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