I'm not certain why you came to the conclusion this is the wrone place, but I too enjoyed your humor and writing style, empathize with you and hope you find some resolution.

My best,

Jon

Hi Jon,

Mainly because I have posted to the other section and nobody has responded. What I have is rare (figures huh?) and so there is nobody I can ask advice to, or ask about meds or side effects or how to handle things.

~*~ Midnight Sun ~*~

Don't write us off just now, it is sometimes nice to have an unconnected person to chat too, about fears, about pain, about life in general.
There are quite a few people who have un diagnosed issues, they don't have a section to belong to either, or like me have an array and nip between boards.
I hope you find some answers, I have a brain injury and it was a very scary time. I found it helpful to chat to others with brain injury even though we all acquired them by different means, stroke, infections, trauma, hypoxia, hydrocephalus etc.
Sometimes it's good to have a place just to vent.
You never know, there maybe someone else join who could use your experience!

I would like to offer a suggestion about posting.

Many people find our forums here by posting a keyword into Google or another engine, on their topic.

So selecting a title for a medical question, that is keyword sensitive will bring more viewers.

This title here while very creative, does not have Pseudotumor in the title. Other patients with pseudotumor would use that term to Google to find others and support.

To illustrate: One of my threads here:
http://neurotalk.psychcentral.com/thread1138.html

I titled it "Magnesium information" and look at the activity on that thread. Granted some are automated bots but there are 396
replies to the conversation, going back many years.

When we first started here, our Admin, DocJohn, suggested,
we title our threads in a way to bring in people. This was his suggestion back then, and it still holds today as very useful.

Thanks for the info!

I have a post up entitled 'Pseudotumor Cerebri' in the General Health Conditions and Rare Disorders forum (just a short post... I didn't run tangent on it, I promise!) I posted it at the end of last month. This lovely rambling threat is just my introduction :)

~*~ Midnight Sun ~*~

Pseudotumor is not a common disorder. So you should be patient
waiting for replies.

Try another post in that forum, with a title like:
Symptoms of Pseudotumor cerebri (intracranial hypertension).

This might draw more people to post since it has 3 good keywords.

Hi Midnight Sun,

My first Post concerned my sudden onset double vision caused by a brain lesion in the occipital region of my brain. While I have multiple other issues, I have never come across anyone else here with this initial problem.

Yet I can sympathise with others who have vision issues and with my other issues - and the Social aspect of this Forum - I have gone on, within my limitations, to participate and to make real friendships. Do not think you are tied to your condition.

I hope you are patient and that you receive the answers you are looking for.

Dave.

Alas I have come back here after my pathetic plea for help/an ear has fallen flat in the other forum. Does anyone know of any other support sites? I'm really stressing out (more gray hair...), and getting upset especially since I have now recently found out I'm allergic to my meds and the next step may be brain surgery. I just want someone to talk to, to get opinions on symptoms and to be there when I need support (handling this all on my own... a nervous breakdown is in the near future I'm thinking).

Thanks.

~*~ Midnight Sun ~*~

These links might be worth checking out;

http://www.dailystrength.org/c/Psued.../support-group

http://www.waisman.wisc.edu/kennedy/lib_pc.html

Help seeking help
 

I see Kiwi has presented some posts that I hope will be what you are seeking. If you are using the search function here, you might try searching by symptom. I remember the urgent need to match up symptoms. To find someone to help you walk the road in front of you. I can only speak for my self but even if I can't offer any usefull technical "been there done that" advice I hope you keep searching with us and talking with us, I'm sorry-me. Who knows, your primary symptom may be the same only in a less rare condition. Good Luck, Ken in Texas.