Hi, new guy here with more questions than answers.

For several years I've had problems in several areas. As far back as 20 years ago I was beginning to have fluttering vision when looking over my shoulder to back up the car. This was followed by some balance issues and a few times falling at the bottom of stairs and an increasing lack of feeling surefooted.

I was a serious bicyclist for about 10 years and then one day around 15 years ago, I just couldn't get out of bed. I was so fatigued. I was treated for Lyme Disease but never felt any better from it.

Then the slight double vision started and shortness of breath about 4 years ago.

I was scanned and they found a 2 pound thymoma in my chest that had partially collapsed my left lung, was against my heart, and had moved my esophagus to the right.

The thymoma was so big, it had begun to metastasize and I underwent 28 consecutive days of radiation treatment. Everything looks clear so far.

A year after the surgery, the double vision came on with a vengeance and has become chronic. Mestinon does not help at all. Neither does Huperzine A.
The weird thing about my double vision is, I wake up cross eyed and it eases after I've been awake for a while. Then it gets worse when I'm tired.

Stress, fast moving objects, and bright light will bring on double vision immediately. I'm told this is not a typical symptom of MG.

My neurologist prescribed prednisone which didn't do much except make feel anger and rage at the slightest provocation. It was bad.

I have had 4 EMG tests that were all negative for MG and LEMS.

None of my blood work even remotely implies that I have MG.

Since I'm not testing positive for any of it, my only option seems to be prednisone. It doesn't work.

I am traveling to Johns Hopkins next month for further testing. They want to do anther EMG. I don't. I have come to really hate that test.

Any suggestions here would be greatly appreciated.