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01-25-2016, 03:16 PM | #1 | ||
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New Member
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I have autoimmune related peripheral neuropathy. The autoimmune cells attack nerves controlling particular muscle groups. The muscles then become very weak which can have a crippling effect. The first time this happened my left foot became immobile; I had to drag it along as I walked. Have had attacks in other areas since then. I'll have more to say later. Wishing the best for everyone!
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01-25-2016, 03:43 PM | #2 | ||
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Legendary
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Hello mea49,
Welcome to the NeuroTalk Support Groups! Here is the link to the Peripheral Neuropathy Forum and also the subforum PN Tips, Resources, Supplements & Other Treatments subforum I'm sure you'll find support and information from our members here. take care. |
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01-25-2016, 05:26 PM | #3 | ||
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Quote:
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01-25-2016, 09:32 PM | #4 | ||
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Member
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Hi mea49
Welcome to NT. I also have suspected autoimmune related PN - look forward to comparing notes. This is a great place to find and share info. Wishing you all the best for limited flare-ups. |
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01-26-2016, 01:19 AM | #5 | |||
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Legendary
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Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. Darlene
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. "Life without God is like an unsharpened pencil -- it has no point.
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01-26-2016, 03:31 PM | #6 | |||
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Senior Member
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Hi and Welcome Mea,
I know you will find good support on the PN forum. They can tell you all the tricks they've found to make this more livable. I just wanted to add that there are good options on braces if you are having frequent muscle deficits that make it hard to walk. A Physical Medicine and Rehabilitation doctor is a great resource for finding ways around limitations and can test and fit for you this kind of thing.
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Littlepaw Shine Your Bright Light |
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01-26-2016, 10:48 PM | #7 | ||
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New Member
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Hi, I have Spinocerebellar Ataxia and was diagnosed in the last year. Trying to learn how to live with this disease.
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