Hi all! I am a Brit with PD/parkinsonism and have EnglishCountryDancer to thank for alerting me to the existence of this site The UK PDS has only a few months ago started a Forum but it is very "freehand" so it is great to see how a similar venture has developed across the pond

I am fairly new to PD. I was not aware of any symptoms and in fact felt fit, well, energetic (working full-time ) and was otherwise healthy, having just returned to the UK from visiting chums in Florida, until 30 March 2006. On that day I had minor breast surgery. At the time I was taking anti-nausea medications and coming round some days post-op knew something very peculiar had happened as I couldn't remember how to move. Once home I remained stumbly, clumsy etc etc and my GP (family doctor in UK) referred me to a neurologist who immediately diagnosed either a drug-induced parkinsonism or PD itself. Time passed, I became slower than a slow-thing and remained stiff, clumsy etc so by the fourth neuro app in August 2006 I was started on Sinemet Plus (the frequency has been upped several times since). Gallbladder surgery in December saw me being again cared for on a high-dependency basis for 6 days (my system, really really doesn't like anaesthetic drugs it would seem!!!) and after this my balance became affected so I started using a stick. I am now also on low-dose Rotogotine but continue stiff, slow, not so much tremor-y, clumsy, stumbling and have to concentrate on everything I do, so fatigue is a big deal!

I live alone with my dog, have no family and am mostly housebound but don't really mind - thanks to the internet I can keep in touch with friends on a daily basis (and NASA TV on the web means I get my "fix" of Shuttle/ISS news!!!) and through the web and television I still feel very much a part of the real world. I can still drive short distances no problem, so my dog and I visit the different parks in the area for our afternoon walks and I treat myself to the occasional browse round a supermarket! These days most major food stores in the UK let you order online for home delivery and this is an absolute bonus! One feels very grand not having to carry shopping (the fact I can't is irrelevant!).

Also, because I look younger than my years, the fact I use a stick just suggests to others that I have a bad leg while giving me the confidence that I won't tip over!

I have found that how you present yourself to others is how you are treated. I don't like the "poor you" (with the head tilt) reaction, so I tend to sidestep discussion of what is wrong with me with all except those closest to me.

OK, apologies for such a long introduction - I got a bit carried away!

There is a lot for me to read in to here on NeuroTalk - so thank you for letting me join!



brockie

P.S. I tend to refer to my condition as parky bo11ox - please let me know if such a reference might be considered offensive here!

Welcome brockie; your post got my attention because I live near the Kennedy Space Center iin Florida, and understand the thrill of watching the space program in action.

We have quite a few here now from your side of the pond.
Always room for another. Don't laugh - I've heard the word bollox before but have to admit I really don't know what it means. Anyhow, it doesn't offend me.

paula

Hi, Brockie, and welcome.

That is very different, the way your dx came about. I had all the energy I needed. Not at all tired. Was limping a bit, but thought it was the result of past knee surgery. Not so. I have pd. I have to say, I'm still not too tired, except for an hour after last dose for the day of Requip. I hope they come up with a cure or a better way to manage symptoms soon. Anyway, welcome, Brockie.


Bill Gates, if you are already giving to the cause of Parkinson's, thank you.

Hiya, Brockie!

Welcome to NeuroTalk! Sorry to hear about the PD but glad you found us and hope you'll find a supportive, good feeling around here.

There is a forum dedicated to PD down a bit on the main forums page. Look around and if you need anything, do let us know!

Hello Brockie, welcome to NT! I'm so glad you found us, I just wish you didn't have to be here in the first place.

Here's a link to the PD forum : http://neurotalk.psychcentral.com/forumdisplay.php?f=34

I'm sure you'll find all the info you need there... as well as the emotional support that is so very important. It's wonderful having people to talk to that know exactly what you are going through.

Don't forget to check out the fun forums too! We have Social Chat (which also has a sub-category of yummy recipes), Pets, Creative Corner for the artistic side of you, etc. NT is a lot more than just a disease forum, it's a family too.

Thanks for the warm welcome! I can see there is a lot to NT, over and above medical chat - looks like fun!



OOOoh and I have just found there is a forum for coeliac/celiac disease - I was diagnosed with that back in the 1970s but have never really investigated it as such!

What a great site you guys!!

I'm glad you like it so far, Brockie.

Hi Brockie and welcome. I like your enthusiasm and can see that yes, you do work hard at giving out what you would like to receive back.

I understand what you're saying about having the internet to reach out with. I have made some unbelivably wonderful friends through these forums and have met many in person. I've also found great friends at gaming sites. I'm hopelessly addicted to Pogo.com.

Aren't pets the most wonderful companions? You may want to visit that forum as well. We LOVE talking about our pets.

If you have any problems navigating the site, let us know. Again, welcome to NeuroTalk, a fantastic place.