Hello everyone,
Well here I am with my ongoing saga of CRPS.
I had a work injury 12/10/15 and now have CRPS in my right arm.
I call my arm New York, because she is the city that never sleeps.
She does what she wants, when she wants.
The temp of my arm is say, Alaska middle of winter...... It's always freezing cold and even the heating pad doesn't seem to help. And, I am like a piece of art work since the color change in my hand is like a mood ring.... Flesh, to pink, to purple, to freaky finger tips, to blue, to normal....
I have been seeing the work comp NP, and she has given me prednisone, which didn't help, a cortisone shot, no help, Flexeral and Ativan, they help with the spasm and sometimes I can sleep. I tried Gabapentin and tramadol and had HORRIBLE side effects. I am also a gastric bypass patients 4 years now, and I cannot even tolerate alcohol, so I think the meds are the same issue for me.
Because this is work comp, I am still fighting to see a neurologist. This has been horrible. I am lucky for the fact that each clinician I have seen have all said CRPS. But, work comp insurance company doesn't want to help with anything.
I am now in my second round of physical therapy, but I feel like an idiot. Every time she begins to work on my hand, I have tears fall down my face. The hypersensitivity is crazy and I feel like it is worse when I am at PT. They have me working in the pool, but it makes my arm feel like it weighs 50lbs and I become dizzy, feel like I might get sick and black out.
Does this happen to anyone else?? Does anyone else find the CRPS gets worse when someone is trying to help, like PT?
I am hoping this can get better and I am hoping I can see a neuro soon, especially since none of the meds they are giving me work.

I know this could be worse, so I am trying to remain as positive as I can.
Thanks for letting me rant, I am happy I found this web site because no one in my personal life can understand what this is like.

Hi Seaglass1972 and welcome to NeuroTalk, but I am sorry you had to come and join us here.

I know all too well the problems that you are facing with your CRPS. Luckily, I did not have to deal with worker comp on top of it all. I am sure that adds to the frustration that having to deal with CRPS can bring.

A lot of us over on the RSD/CRPS section do use aqua therapy which has helped many of us. I have not yet had the chance to give it a try, so I can not say I know the 50lb feeling that you are talking about, but I am sure some of the other members would be happy to share their experiences.

There is a RSD/CRPS section of NeuroTalk where we would love to have you join us and share your experiences. Here is the link to that subforum:

http://neurotalk.psychcentral.com/forum21.html

I hope to see you over there sometime soon.

Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hello Seaglass,

Your name is one of my favorite treasures to search for.

I am sorry you had to join us but it is a soft place to land. I saw that you posted on the CRPS forum and I will leave a more detailed reply for you there.

Welcome aboard