I am new to this forum and hope I can find some help for my daughter. She has been suffering terribly for 8+ months with severe head pressure, vomiting, left-sided numbness, foggy brain. After a spinal tap it was finally confirmed that she has high CSF pressure. The neurologist has put her on Diamox but she is having terrible side affects (server muscle weakness, dizziness, insomnia). Has anybody had any of the same problems and if so have you tried any other medications for high CSF. Thank you for any help. Vickie

Hello and welcome, happy to see you have come to be with us, it a great place to be. We have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hi,

Did they do an MRI? My child has hydrocephalus, we know high csf pressures are serious! There's also idiopathic intracranial hypertension (used to be called pseudotumor cerebri). And there are other things like tumors or inflammation which could cause problems. There is more they can look at, and they should not wait. If she is young then a pediatric neurosurgeon is definitely a better person to consult. Or a much much better neurologist, gotta say neurologists think they know a lot but they don't get what a surgeon gets.

It sounds quite miserable, hope she's gotten real help since you posted this. I don't usually read this section.