Hello, my name is KATO. I was diagnosed with small fiber neuropathy just yesterday. I now have over 30 blood test ahead of me. When this hit me it was like a rock hit me up side of the head. It came on hard and fast it has not let up and it is getting worse daily. I am at my wit's end. I am 50 just turned 50 years old. I've had something wrong with me that I thought was lupus since my early twenties. No one has ever been able to Define exactly what is going on with me. I will pass out for no reason I have a lot of back trouble all my joints hurt so very bad and I'm beside myself with pain most every day. It doesn't matter what day it is I know I'm going to hurt, it is just to what degree will I hurt. My family does not understand. I am unable to work. I have had this pins needles stabbing burning pain that has progressed into electrical sinsations from my spine all the way to the ends of my fingers and my toes in the top of my head. I've had this for three years. I have tried the Gabapentin I have tried Lyrica I am currently on Elavil period nothing seems to help I take oxycodone I take colanapins 4 milligrams per day it doesn't help anymore. I don't want to be drug out my whole life but I do want to be able to have a life. I just hope and pray to God they will find out what is causing these small fiber neuropathy and that they are able to help me. I apologize before complaining so much just as I have joined this group but I do appreciate your attention and your time. God bless you all. K

I understand your issues that youre going through I just got diagnosed with a possible case of Syringomyelia (originating in my neck). I just cant get a good nights sleep because of constant shooting pains (nerve pains) running down my spine along my arms n legs. Fortunately my heart and breathing are unaffected so far. I also have scoliosis which I got diagnosed with back in 3rd or 4th grade. Im 39 now.

I hope that you get to feeling better and can get some good rest. I feel for you.K

I've been on NT for a couple of years now and could not have gotten through my early days without these wonderful peoples' help. Awesome group of people here.

Mine came on very fast a month after my chemo treatments ended in March 2013. I was dx'd via skin punch biopsy in Sept 2013.

Glad to hear you have blood tests coming up to possibly help sort out what's going on with your body.

How did they dx you with SFN ? Symptoms ?

When this hit me I could barely walk due to the pain in my feet. It has since spread to my hands and I have bone deep aches and pains in my arms and legs like I have the flu.

I had to go through quite a few meds before I found something that works for me. It doesn't relieve the pain 100% and I'm not where I'd like to be as far as quality of life but I will continue to push forward in this SFN journey.

Please stay with us and let us know what tests you've had done and what your blood tests show.

I have been in pain mgnt since Sept/Oct (? lol) 2014. Took me awhile to give in and go but it was the best choice for me after all tests were done.

Nice to meet you but sorry for the reasons you are here.

Debi from Georgia

I was dx by punch biopsy as well. After 3 years of misery. I think my doctors thought it was on my head. Thank God for my neuro. Mine began between my knees and ankle. My feet did not bother me at all which I know is very different. I had a sensation of a really really deep itch that I could not scratch. I would dig and dig and dig and I couldn't get anywhere and it absolutely drives me crazy. It has since progressed two having a an electrical feeling go from my spine radiating out both arms to the top of my head to the bottom of my feet. It curls my toes and my hands draw up. This'll last anywhere from a few seconds to three hours. I was being able to take klonopin to help with it assumed because it's load my nervous system down, but now it is not working like it should. Most times now both of my hands are numb and I have a hard time opening water bottles door knobs buttons on my clothes various things of that nature. I'm having difficult time putting sentences together I can't think of words I'm constantly searching for my words and. I can't stand up longer than 15 minutes before I have to lay down due to my back pain being so bad. I don't know if the small fiber neuropathy affect my back pain or not. I have also lupus and osteoarthritis and did you know of this disease degenerative joint disease and I'm beginning to think I've got Ms I don't know hopefully I will find out exactly what is going on after all these blood test. I wish you the best of luck and thank you so much for acknowledging me here and I will definitely let everyone know what my blood test shows up that. Thank you again and God bless

Hi Kato.
I'm sorry you are suffering so. You may benefit from checking out the "Peripheral Neuropathy" section on NT. There are posts that you can search by subject that may help. Also lots of information on supplements, medication and diet that many have found to be beneficial.
Carol

Hey Carol, I have already been reading the PN post. It has a lot of information. I went today for my blood test and when I got home I resherched each test and I recognized seeing all of them before in the PN post. Just goes to show you that the information you receive here is beneficial and correct. Thanks again for helping all of us so freely. P. S. I normally speak to my phone to write my post and it doesn't understand southern english. So please forgive the typos. God bless you all!

I hope you are feeling better. I was diagnosed with small fiber neuropathy in 2017 , with sudden onset on tingling, burning and pain symptoms that progressively got worst. After seeing several doctors and being prescribed anti anxiety medication I started doing some research on my own. It lead me down a path of wholistic healing that has helped me fully recover. I haven't had any symptoms in the last year and half. I have listed below everything that helped me, hope you find it useful:

Supplements: Turmeric (to help with inflammation in the body), B12, Calcium & Magnesium, Methyfolate, Multivitamin & Fish Oil
Diet: balanced meals, cut down sugar and gluten, home made protein and green smoothies
Exercise: Yoga, Meditation and walking everyday

Lastly believing that I can heal made all the difference. I started feeling better from the day I realized health is a state of mind.

P.S: checkout "Heal" on Netflix, amazing documentary on healing and mind body connection