[crocketboon]

Does anyone have an pudendal nerve pain? I;ve had it for over a year and have been doing physical therapy inside the rectum. Has anyone had surgery for this issue?

[Lara]

Welcome to the NeuroTalk Support Groups.

I'm not really sure where to suggest you post, but think that pudendal neuralgia is a peripheral neuropathy.

Here's the link to the
Peripheral Neuropathy Forum
You could try posting and asking over there.

I just checked as I type and if you do a forum search, there are quite a number of posts that come up.
(in PN Forum and in other ones as well)

Forum Search Feature

[glenntaj]

I have pudendal nerve issues on the right side.

This is not that uncommon a condition, but unfortunately it is very often misdiagnosed; it takes a lot of special training to be able to separate pudendal nerve problems from cystitis, prostatitis, or other conditions in the area that can cause similar symptoms.

There are actually relatively few people who have had surgery for this, and not many get very good outcomes; physical therapy and other more conservative approaches are definitely worth trying first.

See:

http://www.pudendal.org/

http://www.pudendalhope.info/

http://www.oswego.edu/~msheppar/isc3...physician.html

[Kitt]

Welcome crocketboon.

[mary jane]

Originally Posted by crocketboon

Does anyone have an pudendal nerve pain? I;ve had it for over a year and have been doing physical therapy inside the rectum. Has anyone had surgery for this issue?

I don't think you should have surgery for this, any doctor offering surgery for PNE is a quack butcher. There are no official statistics for the outcome of the surgery except this lame one with a sample size of 16 (n=16) ...
they should come clean with their quackery

BACKGROUND:
We assess that pudendal neuralgia is a tunnel syndrome due to a ligamentous entrapment of the pudendal nerve and have treated 400 patients surgically since 1987. We have had no major complication. We conducted a randomized controlled trial to evaluate our procedure.
METHODS:
A sequential, randomized controlled trial to compare decompression of the pudendal nerve with non-surgical treatment. Patients aged 18-70, had chronic, uni/bilateral perineal pain, positive temporary response to blocks at the ischial spine and in Alcock's canal. They were randomly assigned to surgery (n=16) and control (n=16) groups. Primary end point was improvement at 3 months following surgery or assignment to the non-surgery group. Secondary end points were improvement at 12 months and at 4 years following surgical intervention.
RESULTS:
A significantly higher proportion of the surgery group was improved at 3 months. On intention-to-treat analysis 50% of the surgery group reported improvement in pain at 3 months versus 6.2% of the non-surgery group (p=.0155); in the analysis by treatment protocol the figures were 57.1% versus 6.7% (p=.0052). At 12 months, 71.4% of the surgery group compared with 13.3% of the non-surgery group were improved, analyzing by treatment protocol (p=.0025). Only those randomized to surgery were evaluated at 4 years: 8 remained improved at 4 years. No complications were encountered.


Source: Decompression and transposition of the pudendal nerve in pudendal neuralgia: a randomized controlled trial and long-term evaluation. - PubMed - NCBI