Hi Everyone,

I am diagnosed with R/R M.S., Meningioma (A benign brain tumor that is pressing on my cerebellum), Peripheral Neuropathy, Diabetes 2, Peripheral Arterial Disease, EBV (Ebstein Barr Virus), Osteoarthritis, Optical Hypertension, Mixed Connective Tissue disease....and I am sure I am leaving some out.

I live in Key West, FLorida. I currently receive SSDI and Medicare. Up until Jan. 2006, I was also on full Medicaid but the state put dual eligibles (SSDI only with Medicare and Medicaid) on ridiculously high share of costs. I have been fighting with them for over a year and I just came across a little known.....well, let me change that to an unknown.....federal amendment called the Pickle Amendment....which protest individuals that lose their SSI because of SSDI COLAS. If anyone needs/wants info about that, let me know but so far, I've got them to agree that I am eligible under it....after they all had to scramble to find out what it is!

I really need my Medicaid back because I need my eye care and transportation to Miami as there are no specialist's in all of the Florida Keys.

I look forward to meeting you.
capp3736

Welcome to NeuroTalk capp....it surely pays to research doesn't it!

Here is the link to our SSDI forum...I think you should post this info there also.

http://neurotalk.psychcentral.com/forumdisplay.php?f=28

I can tell already that you'll be an asset to this place.

Hi, Capp, welcome to NeuroTalk!

Wow, that sure is a mixed bag and I'm sorry you're facing so many issues.

We also have a good group in the MS forum, so be sure to stop by and say "hey" to us there.

Let us know if we can assist you with anything.

Hi Alffe,

Thanks for the welcome. I will definitely go to the SSDI forum and post info about the Pickle Amendment. I see you are involved in a suicide hotline. I used to work for a crisis, information and referral phone line also.

Margie

Hi Cindy and thank you for the welcome. I will check out the MS forum also.

Margie

Hi Margie and welcome to NeuroTalk. The people here are wonderful.

I had to smile after you listed your physical limitations and said that you probably left something out. That's how I feel when people want me to list surgeries I've had. I'm sure I ALWAYS leave out 1 or 2 surgeries.

I'm glad you stopped by. I am amazed every time I come in to welcome somebody. I learn something new nearly every day. And your post is very timely. I know a member, who rarely posts here anymore, who I believe is in the same situation as you in Florida. She may want to know about this, so thanks much!

Again, welcome.

Hi Doody,

Thanks for the welcome. Like you, I even have a hard time remembering all the surgeries. And forget medications, I take about 15 different prescriptions each day,

I will be happy to talk to your friend. Also, I went over to the SSDI forum and posted more info about it.

Take Care,
Margie

Margie..I've never been involved with a hotline although I really believe in them.. this is where I hang out...

http://neurotalk.psychcentral.com/forumdisplay.php?f=29

Hi Capp, Welcome I am in great health except for a handful of problems. But it sounds like you have a bigger handful. Hang tough!

Yeh, you got it right you have to do the research and fight these people They don't like it and usually win only when they scare us off.

Thanks Alffe,

I will save it and check it out tomorrow. Feeling yucky, got another MS or EBV....or both....infection and feel like I have the flu.

Margie