[aaronh819]

have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists neurologist neuro opthalmologist had an mri ct all with no avail. The last few months it’s became debilitating progressing so fast I have no idea what to do. Having to lay in bed with a wet cloth on my eyes for hours upon hours because of the pain. My eyes have became red also all the time. Also always have a dull headache on the left side all the time that’s sore to the touch. I’ll try and describe the visual problems or at least what I can think of there’s so much. Terrible visual afterimages constantly seeing everything you look at repeatedly, seeing clear outlines of everything you look at whenever it’s bright, tons of floaters, white dots everywhere whenever looking at the sky or anything bright, flashes of light all the time from white to blue or black. Even when I close my eyes I always see blue light even when I’m a dark room with my eyes closed for hours I can’t ever get rid of this. I never heard of anyone seeing blue like this all the time with eyes closed. Also have an arc of light in the side of my right eye almost all the time, extremely bad light sensitivity, if I see any glare of light or head or taillights or anything it gets burned into my eyes for minutes. I cannot find help it is progressing so fast I’m beyond terrified. I can even look at my phone or anything and look around and see a black outline of whatever I was looking at for minutes. There is so much more going on with my vision and head pressure and so much more I could never list it all. I also have been having weird pains and feelings in my head muscle twitches almost nonstop and so much more. If anyone has experienced anything like this please help me. I have lost all faith in the medical field just keep getting put off months at a time. I Pray more than anything for healing. Please anyone that can help please do so. Thank you and God bless

[kiwi33]

Hi Aaron

Welcome to NeuroTalk .

I am sorry to read about your visual problems.

This is just a guess but they could be an unusual form of migraine.

You could describe your experiences in the Headache forum (https://www.neurotalk.org/forum32/); other members might be able to make helpful suggestions.

All the best.

[Jomar]

Have you looked at any alternative care?
acupuncture
naturopathy
upper cervical chiropractic care
possibly some tight neck muscles with trigger points or spasms?

I assume the MRI & CT would check blood flow in neck also